Resultats de la cerca

Big Data in Organ Transplantation: Registries and Administrative Claims per Allan B. Massie, L.M. Kuricka, Dorry L. Segev

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Common data elements in epilepsy research: Development and implementation of the NINDS epilepsy CDE project per David W. Loring, Daniel H. Lowenstein, Nicholas M. Barbaro, Brandy E. Fureman, Joanne Odenkirchen, Margaret Jacobs, Joan K. Austin, Dennis Dlugos, Jacqueline A. French, William D. Gaillard, Bruce P. Hermann, Dale C. Hesdorffer, Steven N. Roper, Anne C. Van Cott, Stacie Grinnon, Alexandra Stout

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SEEK: a systems biology data and model management platform per Katherine Wolstencroft, Stuart Owen, Olga Krebs, Quyen Le Hoang Thuy To Nguyen, Natalie Stanford, Martin Golebiewski, Andreas Weidemann, Meik Bittkowski, Lihua An, David Shockley, Jacky L. Snoep, Wolfgang Mueller, Carole Goble

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Personal genomes in progress: from the Human Genome Project to the Personal Genome Project per Jeantine E. Lunshof, Jason Bobe, John Aach, Misha Angrist, Joseph V. Thakuria, Daniel B. Vorhaus, Margret R. Hoehe, George M. Church

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The sheep genome reference sequence: a work in progress per Alan Archibald, N. E. Cockett, Brian P. Dalrymple, T. Faraut, James Kijas, J F Maddox, John C. McEwan, V. Hutton Oddy, H. W. Raadsma, Claire M. Wade, Jian Wang, W. Wang, Xun Xu

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A Review of Cross Organizational Healthcare Data Sharing per Mana Azarm, Craig Kuziemsky, Liam Peyton

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Innovative Genomic Collaboration Using the GENESIS (GEM.app) Platform per Michael Gonzalez, Marni J. Falk, Xiaowu Gai, Richard Postrel, Rebecca Schüle, Stephan Züchner

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Prepublication data sharing per Ewan Birney, Thomas J. Hudson, Green Green, Carl A. Gunter, Sean R. Eddy, Jane Rogers, Harris, S. Dusko Ehrlich, Rolf Apweiler, Christopher P. Austin, Leif Berglund, Martin Bobrow, C. Bountra, Anthony J. Brookes, Anne Cambon‐Thomsen, Emma Carter, Rex L. Chisholm, Juan L. Contreras, Roger Cooke, William L. Crosby, Ken Dewar, Richard Durbin, Dyke Som., Ecker, Khaled El Emam, Lars Feuk, Stacey B. Gabriel, Jim Gallacher, William M Gelbart, Antonio Granell, Francisco Guarner, Tim Hubbard, Sara Jackson, Jennifer L. Jennings, Yann Joly, Steven J.M. Jones, Jane Kaye, Karen L. Kennedy, Bartha Maria Knoppers, Nikos C. Kyrpides, William W. Lowrance, Jingchu Luo, John Mackay, L Martín-Rivera, W. Richard McCombie, John D. McPherson, Luke E. Miller, Wendy R. Miller, Daniel E. Moerman, Vincent Mooser, Cynthia C. Morton, James M. Ostell, B. F. Francis Ouellette, Julian Parkhill, Parminder Raina, Chris Rawlings, Steven E. Scherer, Stephen W. Scherer, Paul N. Schofield, Christoph W. Sensen, Victoria Stodden, Michael R. Sussman, Toshio Tanaka, Janet M. Thornton, Tatsuhiko Tsunoda, David Valle, Eero Vuorio, Neil Walker, Steven Wallace, George M. Weinstock, William B. Whitman, Kim C. Worley, Chin‐Lee Wu, Juan Wu, Jiyeon Yu

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Experimental Data and Geometric Analysis Repository—EDGAR per Kedar Aras, Wilson Good, Jess Tate, Brett Burton, Dana H. Brooks, Jaume Coll‐Font, Olaf Doessel, Walther H. W. Schulze, Danila Potyagaylo, Linwei Wang, Peter van Dam, Rob MacLeod

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The MNI data-sharing and processing ecosystem per Samir Das, Tristan Glatard, Leigh MacIntyre, Cécile Madjar, Christine Rogers, Marc-Étienne Rousseau, Pierre Rioux, D.R. MacFarlane, Zia Mohades, Rathi Gnanasekaran, Carolina Makowski, Penelope Kostopoulos, Reza Adalat, Najmeh Khalili‐Mahani, Guiomar Niso, Jeremy T. Moreau, Alan C. Evans

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Patient-powered research networks: building capacity for conducting patient-centered clinical outcomes research per Sarah E. Daugherty, Sarita Wahba, Rachael Fleurence, Paul Avillach, Janice M. Buelow, Richard B. Colletti, Florian Eichler, Seth Ginsberg, Esi Morgan DeWitt, Robert McBurney, Peter A. Merkel, Richard A. Mularski, Marc D. Natter, Andrew A. Nierenberg, L.C. Horn, Megan O'Boyle, Holly L. Peay, Mark J. Pletcher, Susan Redline, Bruce Robinson, Michael D Kappleman, Kathleen E. Sullivan, Sue Friedman, Rebecca Sutphen, John P. Walsh

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ANIMA: A data-sharing initiative for neuroimaging meta-analyses per Andrew Reid, Danilo Bzdok, Sarah Genon, Robert Langner, Veronika Müller, Claudia R. Eickhoff, Felix Hoffstaedter, Edna C. Cieslik, Peter T. Fox, Angela R. Laird, Katrin Amunts, Svenja Caspers, Simon B. Eickhoff

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Motivations, concerns and preferences of personal genome sequencing research participants: Baseline findings from the HealthSeq project per Saskia C. Sanderson, Michael D. Linderman, Sabrina A. Suckiel, George A. Díaz, Randi E. Zinberg, Kadija Ferryman, Melissa Wasserstein, Andrew Kasarskis, Eric E. Schadt

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Research Stakeholders’ Views on Benefits and Challenges for Public Health Research Data Sharing in Kenya: The Importance of Trust and Social Relations per Irene Jao, Francis Kombe, Salim Mwalukore, Susan Bull, Michael Parker, Dorcas Kamuya, Sassy Molyneux, Vicki Marsh

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Metadata management for high content screening in OMERO per Simon Li, Sébastien Besson, Colin Blackburn, Mark Carroll, Gus Ferguson, Helen Flynn, Kenneth Gillen, R. A. Leigh, Dominik Lindner, Melissa Linkert, William J. Moore, Balaji Ramalingam, Emil Rozbicki, Gabriella Rustici, Aleksandra Tarkowska, Petr Walczysko, Eleanor Williams, Chris Allan, Jean-Marie Burel, Josh Moore, Jason R. Swedlow

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The Worldwide Alzheimer's Disease Neuroimaging Initiative: An update per James A. Hendrix, Brad Finger, Michael W. Weiner, Giovanni B. Frisoni, Takeshi Iwatsubo, Christopher C. Rowe, Seong Yoon Kim, Salvador M. Guinjoan, Gustavo Sevlever, María C. Carrillo

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Building the foundation for genomics in precision medicine per Samuel Aronson, Heidi L. Rehm

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Sharing Research Data and Intellectual Property Law: A Primer per Michael W. Carroll

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Ethical and practical challenges of sharing data from genome-wide association studies: The eMERGE Consortium experience per Amy L. McGuire, Melissa Basford, Lynn G. Dressler, Stephanie M. Fullerton, Barbara A. Koenig, Rongling Li, Catherine A. McCarty, Erin M. Ramos, Maureen E. Smith, Carol P. Somkin, Carol Waudby, Wendy A. Wolf, Ellen Wright Clayton

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Sharing Individual Patient Data from Clinical Trials per Jeffrey M. Drazen

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