Personal genome research: what should the participant be told?

Should the results of whole genome sequencing research be disclosed to participants, in particular when the results have uncertain or indeterminate phenotypic consequences? This controversial question is considered in light of one author's (JL) experience as a geneticist who recently had his ow...

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Bibliographic Details
Main Authors: McGuire, Amy L., Lupski, James R.
Format: Text
Language:English
Published: 2010
Subjects:
Online Access:https://pmc.ncbi.nlm.nih.gov/articles/PMC2868334/
https://pubmed.ncbi.nlm.nih.gov/20381895
http://dx.doi.org/10.1016/j.tig.2009.12.007
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