Resultados de procura

Network for Pancreatic Organ Donors with Diabetes (nPOD): developing a tissue biobank for type 1 diabetes por Martha Campbell‐Thompson, Clive Wasserfall, John S. Kaddis, Anastasia Albanese-O’Neill, Teodora Staeva, Concepcion R. Nierras, Jayne Moraski, Patrick Rowe, Roberto Gianani, George S. Eisenbarth, James M. Crawford, Desmond Schatz, Alberto Pugliese, Mark A. Atkinson

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Next-Generation Sequencing for Infectious Disease Diagnosis and Management por Martina I. Lefterova, Carlos J. Suarez, Niaz Banaei, Benjamin A. Pinsky

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Cell Line and DNA Biobank From Patients Affected by Genetic Diseases por Mirella Filocamo, Raffaella Mazzotti, Fabio Corsolini, Marina Stroppiano, Giorgia Stroppiana, Serena Grossi, Susanna Lualdi, Barbara Tappino, Federica Lanza, Sara Galotto, Roberta Biancheri

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Nordic biological specimen banks as basis for studies of cancer causes and control – more than 2 million sample donors, 25 million person years and 100 000 prospective cancers por ­Eero Pukkala, Aage Andersen, Göran Berglund, Randi E. Gislefoss, Vilmundur Guðnason, Göran Hallmans, Egil Jellum, Pekka Jousilahti, Paul Knekt, Pentti Koskela, Pentti Kyyrönen, Per Lenner, Tapio Luostarinen, Arthur Löve, Helga M. Ögmundsdóttir, Pär Stattin, Leena Tenkanen, Laufey Tryggvadóttír, Jarmo Virtamo, Göran Wadell, Anders Widell, Matti Lehtinen, Joakim Dillner

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Public and Biobank Participant Attitudes toward Genetic Research Participation and Data Sharing por Amy A. Lemke, W.A. Wolf, Jeni Hebert‐Beirne, Maureen E. Smith

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Canary Prostate Active Surveillance Study: Design of a Multi-institutional Active Surveillance Cohort and Biorepository por Lisa F. Newcomb, James D. Brooks, Peter R. Carroll, Ziding Feng, Martin Gleave, Peter S. Nelson, Ian M. Thompson, Daniel W. Lin

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Creating a global rare disease patient registry linked to a rare diseases biorepository database: Rare Disease-HUB (RD-HUB) por Yaffa Rubinstein, Stephen C. Groft, Ronald Bartek, Kyle Brown, Ronald Christensen, Elaine Collier, Amy Farber, Jennifer Farmer, John H. Ferguson, Christopher B. Forrest, Nicole C. Lockhart, Kate R. McCurdy, Helen Moore, Geraldine B. Pollen, Rachel Richesson, Vanessa Rangel Miller, Sara Chandros Hull, Jim Vaught

Ligazón do recurso

“Collection of a lifetime: A practical approach to developing a longitudinal collection of women's healthcare biological samples” por Mark K. Santillan, Kimberly K. Leslie, Wendy S. Hamilton, Brenda Boese, Monika Ahuja, Stephen K. Hunter, Donna A. Santillan

Ligazón do recurso

The EuroBioBank Network: 10 years of hands-on experience of collaborative, transnational biobanking for rare diseases por Marina Mora, C. Angelini, Fabrizia Bignami, Anne-Mary Bodin, Marco Crimi, Jeanne Hélène di Donato, Alex E. Felice, Cécile Jaeger, Veronika Karcagi, Yann LeCam, Stephen Lynn, Marija Meznarič, Maurizio Moggio, Lucía Monaco, Luisa Politano, Manuel Posada de la Paz, Safaa Saker, Peter Schneiderat, Monica Ensini, Barbara Garavaglia, David Gurwitz, Diana Johnson, Francesco Muntoni, Jack Puymirat, Mojgan Reza, Thomas Voit, Chiara Baldo, F. Dagna Bricarelli, Stefano Goldwurm, Giuseppe Merla, Elena Pegoraro, Alessandra Renieri, Kurt Zatloukal, Mirella Filocamo, Hanns Lochmüller

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Confronting real time ethical, legal, and social issues in the Electronic Medical Records and Genomics (eMERGE) Consortium por Ellen Wright Clayton, Maureen E. Smith, Stephanie M. Fullerton, Wylie Burke, Catherine A. McCarty, Barbara A. Koenig, Amy L. McGuire, Laura M. Beskow, Lynn G. Dressler, Amy A. Lemke, Erin M. Ramos, Laura Lyman Rodriguez

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Two large‐scale surveys on community attitudes toward an opt‐out biobank por Kyle B. Brothers, Daniel R. Morrison, Ellen Wright Clayton

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The Adult Netherlands Twin Register: Twenty-Five Years of Survey and Biological Data Collection por Gonneke Willemsen, Jacqueline M. Vink, Abdel Abdellaoui, Anouk den Braber, Jenny H. D. A. van Beek, Harmen H. M. Draisma, Jenny van Dongen, Dennis van ‘t Ent, Lot M. Geels, René van Lien, Lannie Ligthart, Mathijs Kattenberg, Hamdi Mbarek, Marleen H. M. de Moor, Melanie Neijts, René Pool, N. Stroo, Cornelis Kluft, H. Eka D. Suchiman, P. Eline Slagboom, Eco J. C. de Geus, Dorret I. Boomsma

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The ethical use of existing samples for genome research por Oliver F. Bathe, Amy L. McGuire

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Assessing the accuracy of observer-reported ancestry in a biorepository linked to electronic medical records por Logan Dumitrescu, Marylyn D. Ritchie, Kristin Brown‐Gentry, Jill M. Pulley, Melissa Basford, Joshua C. Denny, Jorge R. Oksenberg, Dan M. Roden, Jonathan L. Haines, Dana C. Crawford

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The biobank of the Norwegian mother and child cohort Study: A resource for the next 100 years por Kjersti S. Rønningen, Liv Paltiel, Helle Margrete Meltzer, R. Nordhagen, Kari Kveim Lie, Ragnhild Hovengen, Margaretha Haugen, Wenche Nystad, Per Magnus, Jane A. Hoppin

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Biobanking past, present and future por Yvonne G. De Souza, John S. Greenspan

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Intentions to Donate to a Biobank in a National Sample of African Americans por Jasmine A. McDonald, Susan T. Vadaparampil, Deborah J. Bowen, Gayenell Magwood, Jihad S. Obeid, Melanie Jefferson, Richard Drake, Mulugeta Gebregziabher, Chanita Hughes Halbert

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The procurement, storage, and quality assurance of frozen blood and tissue biospecimens in pathology, biorepository, and biobank settings por Maryam Shabihkhani, Gregory M. Lucey, Bowen Wei, Sergey Mareninov, Jerry J. Lou, Harry V. Vinters, Elyse J. Singer, Timothy F. Cloughesy, William H. Yong

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Biobanking in microbiology: From sample collection to epidemiology, diagnosis and research por Paolo De Paoli

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The beliefs, motivations, and expectations of parents who have enrolled their children in a genetic biorepository por Erin D. Harris, Sonja I. Ziniel, Jonathan G. Amatruda, Catherine Clinton, Sarah Savage, Patrick L. Taylor, Noelle Huntington, Robert C. Green, Ingrid A. Holm

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