Search Results - Werner Lin

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  1. 1
    That eagle covering me: transitioning and connected autonomy for emerging adults with cystinosis

    That eagle covering me: transitioning and connected autonomy for emerging adults with cystinosis by Doyle, Maya, Werner-Lin, Allison

    Published 2014
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  2. 2
    A multi-case report of the pathways to and through genetic testing and cancer risk management for BRCA mutation-positive women aged 18–25

    A multi-case report of the pathways to and through genetic testing and cancer risk management for BRCA mutation-positive women aged 18–25 by Hoskins, Lindsey M., Werner-Lin, Allison

    Published 2012
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  3. 3
    In Their Own Words: Treating Very Young BRCA1/2 Mutation-Positive Women with Care and Caution

    In Their Own Words: Treating Very Young BRCA1/2 Mutation-Positive Women with Care and Caution by Hoskins, Lindsey M., Werner-Lin, Allison, Greene, Mark H.

    Published 2014
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  4. 4
    Balancing Genetics (Science) and Counseling (Art) in Prenatal Chromosomal Microarray Testing

    Balancing Genetics (Science) and Counseling (Art) in Prenatal Chromosomal Microarray Testing by Allison Werner‐Lin, Judith L. M. McCoyd, Barbara A. Bernhardt

    Published 2016
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    Revisão
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  5. 5
    Shifting and Intersecting Needs: Parents’ Experiences During and Following the Withdrawal of Life Sustaining Treatments in the PICU

    Shifting and Intersecting Needs: Parents’ Experiences During and Following the Withdrawal of Life Sustaining Treatments in the PICU by Broden, Elizabeth G., Werner-Lin, Allison, Curley, Martha A.Q., Hinds, Pamela S.

    Published 2022
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  6. 6
    Leadership, Literacy, and Translational Expertise in Genomics: Challenges and Opportunities for Social Work

    Leadership, Literacy, and Translational Expertise in Genomics: Challenges and Opportunities for Social Work by Werner-Lin, Allison, McCoyd, Judith L. M., Doyle, Maya H., Gehlert, Sarah J.

    Published 2016
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  7. 7
    “Something extra on chromosome 5”: Parents’ understanding of positive prenatal chromosomal microarray analysis (CMA) results

    “Something extra on chromosome 5”: Parents’ understanding of positive prenatal chromosomal microarray analysis (CMA) results by Walser, Sarah A., Werner-Lin, Allison, Russell, Amita, Wapner, Ronald J., Bernhardt, Barbara A.

    Published 2016
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  8. 8
    An Observational Study of Children’s Involvement in Informed Consent for Exome Sequencing Research

    An Observational Study of Children’s Involvement in Informed Consent for Exome Sequencing Research by Miller, Victoria A., Werner-Lin, Allison, Walser, Sarah A., Biswas, Sawona, Bernhardt, Barbara A.

    Published 2016
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  9. 9
    Anagrelide for thrombocytosis in myeloproliferative disorders

    Anagrelide for thrombocytosis in myeloproliferative disorders by Michael Steurer, Guenther Gastl, Wieslaw‐Wiktor Jedrzejczak, Robert Pytlík, Werner Lin, Ernst Schlögl, Heinz Gisslinger

    Published 2004
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    Artigo
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  10. 10
    ‘My funky genetics’: BRCA1/2 mutation carriers’ understanding of genetic inheritance and reproductive merger in the context of new repro-genetic technologies

    ‘My funky genetics’: BRCA1/2 mutation carriers’ understanding of genetic inheritance and reproductive merger in the context of new repro-genetic technologies by Werner-Lin, Allison, Rubin, Lisa R., Doyle, Maya, Stern, Rikki, Savin, Katie, Hurley, Karen, Sagi, Michal

    Published 2012
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  11. 11
    How do providers discuss the results of pediatric exome sequencing with families?

    How do providers discuss the results of pediatric exome sequencing with families? by Walser, Sarah A, Werner-Lin, Allison, Mueller, Rebecca, Miller, Victoria A, Biswas, Sawona, Bernhardt, Barbara A

    Published 2017
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  12. 12
    Legacies and Relationships: Diverse Social Networks and BRCA1/2 Risk Management Decisions and Actions

    Legacies and Relationships: Diverse Social Networks and BRCA1/2 Risk Management Decisions and Actions by Ersig, Anne L., Werner-Lin, Allison, Hoskins, Lindsey, Young, Jennifer, Loud, Jennifer T., Peters, June, Greene, Mark H.

    Published 2018
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  13. 13
    Waiting and “weighted down”: the challenge of anticipatory loss for individuals and families with Li‑Fraumeni Syndrome

    Waiting and “weighted down”: the challenge of anticipatory loss for individuals and families with Li‑Fraumeni Syndrome by Werner‑Lin, Allison, Young, Jennifer L., Wilsnack, Catherine, Merrill, Shana L., Groner, Victoria, Greene, Mark H., Khincha, Payal P.

    Published 2020
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  14. 14
    Embodied risk for families with Li-Fraumeni syndrome: Like electricity through my body

    Embodied risk for families with Li-Fraumeni syndrome: Like electricity through my body by Werner-Lin, Allison, Shepherd, Rowan Forbes, Young, Jennifer L., Wilsnack, Catherine, Merrill, Shana L., Greene, Mark H., Khincha, Payal P.

    Published 2022
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  15. 15
    Incorporating information about pre-implantation genetic diagnosis into discussions about testing and risk-management for BRCA1/2 mutations: A qualitative study of patient preferences

    Incorporating information about pre-implantation genetic diagnosis into discussions about testing and risk-management for BRCA1/2 mutations: A qualitative study of patient preferen... by Hurley, Karen, Rubin, Lisa, Werner-Lin, Allison, Sagi, Michal, Kemel, Yelena, Stern, Rikki, Phillips, Aliza, Cholst, Ina, Kauff, Noah, Offit, Kenneth

    Published 2012
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  16. 16
    Family Identity and Roles in the Context of Li-Fraumeni Syndrome: “No One’s Like Us Mutants”

    Family Identity and Roles in the Context of Li-Fraumeni Syndrome: “No One’s Like Us Mutants” by Wilsnack, Catherine, Young, Jennifer L., Merrill, Shana L., Groner, Victoria, Loud, Jennifer T., Bremer, Renee C., Greene, Mark H., Khincha, Payal P., Werner-Lin, Allison

    Published 2021
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  17. 17
    Couples coping with screening burden and diagnostic uncertainty in Li-Fraumeni syndrome: Connection versus independence

    Couples coping with screening burden and diagnostic uncertainty in Li-Fraumeni syndrome: Connection versus independence by Young, Jennifer L., Pantaleao, Ashley, Zaspel, Lori, Bayer, Jessica, Peters, June A., Khincha, Payal P., Bremer, Renee C., Loud, Jennifer T., Greene, Mark H., Achatz, Maria Isabel, Savage, Sharon A., Werner-Lin, Allison

    Published 2018
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  18. 18
    Family Health Leaders: Lessons on Living with Li-Fraumeni Syndrome across Generations

    Family Health Leaders: Lessons on Living with Li-Fraumeni Syndrome across Generations by PANTALEAO, ASHLEY, YOUNG, JENNIFER L., EPSTEIN, NORMAN B., CARLSON, MAE, BREMER, RENÉE C., KHINCHA, PAYAL P., PETERS, JUNE A., GREENE, MARK H., ROY, KEVIN, ACHATZ, MARIA ISABEL, SAVAGE, SHARON A., WERNER-LIN, ALLISON

    Published 2019
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