Resultados de procura - WOLTERS, PAMELA L
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Experiences of Families with a Child, Adolescent, or Young Adult with Neurofibromatosis Type 1 and Plexiform Neurofibroma Evaluated for Clinical Trials Participation at the Nationa... por Martin, Staci, Gillespie, Andrea, Wolters, Pamela L., Widemann, Brigitte C.
Publicado 2010Text -
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A Phase II Study of Pegylated Interferon Alfa-2b (PEG-Intron®) in Children with Diffuse Intrinsic Pontine Glioma (DIPG) por Warren, Katherine E., Bent, Robyn, Wolters, Pamela L., Prager, Alisa, Hanson, Ryan, Packer, Roger, Shih, Joanna, Camphausen, Kevin
Publicado 2011Text -
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Diagnosis disclosure, medication hiding, and medical functioning among perinatally-infected, HIV-positive children and adolescents por Calabrese, Sarah K., Martin, Staci, Wolters, Pamela L., Toledo-Tamula, Mary A., Brennan, Tara L., Wood, Lauren V.
Publicado 2012Text -
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The Needs of Adolescents and Young Adults with Chronic Illness: Results of a Quality Improvement Survey por Allen, Taryn, Reda, Stephanie, Martin, Staci, Long, Phoebe, Franklin, Alexis, Bedoya, Sima Zadeh, Wiener, Lori, Wolters, Pamela L.
Publicado 2022Text -
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A Comparison of Adherence Assessment Methods Utilized in the United States: Perspectives of Researchers, HIV-Infected Children, and their Caregivers por Martin, Staci, Elliott-DeSorbo, Deborah K., Calabrese, Sarah, Wolters, Pamela L., Roby, Gregg, Brennan, Tara, Wood, Lauren V.
Publicado 2009Text -
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The Relationship Between Heart Rate Variability, Psychological Flexibility, and Pain in Neurofibromatosis Type 1 por Allen, Taryn M., Struemph, Kari L., Toledo-Tamula, Mary Anne, Wolters, Pamela L., Baldwin, Andrea, Widemann, Brigitte, Martin, Staci
Publicado 2018Text -
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Detection and characterization of neurotoxicity in cancer patients using proton MR spectroscopy por Steffen-Smith, Emilie A., Wolters, Pamela L., Albert, Paul S., Baker, Eva H., Shimoda, Kim C., Barnett, Alan S., Warren, Katherine E.
Publicado 2008Text -
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Acceptance and Commitment Therapy in Youth with Neurofibromatosis Type 1 (NF1) and Chronic Pain and Their Parents: A Pilot Study of Feasibility and Preliminary Efficacy por Martin, Staci, Wolters, Pamela L., Toledo-Tamula, Mary Anne, Schmitt, Shawn Nelson, Baldwin, Andrea, Starosta, Amy, Gillespie, Andrea, Widemann, Brigitte
Publicado 2016Text -
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Phase I trial of convection-enhanced delivery of IL13-Pseudomonas toxin in children with diffuse intrinsic pontine glioma por Heiss, John D., Jamshidi, Aria, Shah, Smit, Martin, Staci, Wolters, Pamela L., Argersinger, Davis P., Warren, Katherine E., Lonser, Russell R.
Publicado 2018Text -
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Achieving consensus for clinical trials: The REiNS International Collaboration por Plotkin, Scott R., Blakeley, Jaishri O., Dombi, Eva, Fisher, Michael J., Hanemann, C. Oliver, Walsh, Karin S., Wolters, Pamela L., Widemann, Brigitte C.
Publicado 2013Text -
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Conclusions and future directions for the REiNS International Collaboration por Widemann, Brigitte C., Blakeley, Jaishri O., Dombi, Eva, Fisher, Michael J., Hanemann, Clemens O., Walsh, Karin S., Wolters, Pamela L., Plotkin, Scott R.
Publicado 2013Text -
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Patient-reported outcomes in neurofibromatosis and schwannomatosis clinical trials por Wolters, Pamela L., Martin, Staci, Merker, Vanessa L., Gardner, Kathy L., Hingtgen, Cynthia M., Tonsgard, James H., Schorry, Elizabeth K., Baldwin, Andrea
Publicado 2013Text -
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Development and Validation of the English Pain Interference Index and Pain Interference Index-Parent Report por Martin, Staci, Schmitt, Shawn Nelson, Wolters, Pamela L., Abel, Brittany, Toledo-Tamula, Mary Anne, Baldwin, Andrea, Wicksell, Rikard K., Merchant, Melinda, Widemann, Brigitte
Publicado 2014Text -
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Predictors of cognitive development in children with neurofibromatosis type 1 and plexiform neurofibromas por HOU, YANG, ALLEN, TARYN, WOLTERS, PAMELA L, TOLEDO-TAMULA, MARY ANNE, MARTIN, STACI, BALDWIN, ANDREA, REDA, STEPHANIE, GILLESPIE, ANDY, GOODWIN, ANNE, WIDEMANN, BRIGITTE C
Publicado 2020Text -
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Pain Interference in Youth with Neurofibromatosis Type 1 and Plexiform Neurofibromas and Relation to Disease Severity, Social-Emotional Functioning, and Quality of Life por Wolters, Pamela L., Burns, Katherine M., Martin, Staci, Baldwin, Andrea, Dombi, Eva, Toledo-Tamula, Mary Anne, Dudley, William N., Gillespie, Andrea, Widemann, Brigitte C.
Publicado 2015Text -
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Enhancing Neurofibromatosis Clinical Trial Outcome Measures Through Patient Engagement: Lessons From REiNS por Merker, Vanessa L., Lessing, Andrés J., Moss, Irene, Hussey, Maureen, Oberlander, Beverly, Rose, Traceann, Thalheimer, Raquel, Wirtanen, Tracy, Wolters, Pamela L., Gross, Andrea M., Plotkin, Scott R.
Publicado 2021Text