Resultats de la cerca - WOLTERS, PAMELA L
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Experiences of Families with a Child, Adolescent, or Young Adult with Neurofibromatosis Type 1 and Plexiform Neurofibroma Evaluated for Clinical Trials Participation at the Nationa... per Martin, Staci, Gillespie, Andrea, Wolters, Pamela L., Widemann, Brigitte C.
Publicat 2010Text -
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A Phase II Study of Pegylated Interferon Alfa-2b (PEG-Intron®) in Children with Diffuse Intrinsic Pontine Glioma (DIPG) per Warren, Katherine E., Bent, Robyn, Wolters, Pamela L., Prager, Alisa, Hanson, Ryan, Packer, Roger, Shih, Joanna, Camphausen, Kevin
Publicat 2011Text -
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Diagnosis disclosure, medication hiding, and medical functioning among perinatally-infected, HIV-positive children and adolescents per Calabrese, Sarah K., Martin, Staci, Wolters, Pamela L., Toledo-Tamula, Mary A., Brennan, Tara L., Wood, Lauren V.
Publicat 2012Text -
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The Needs of Adolescents and Young Adults with Chronic Illness: Results of a Quality Improvement Survey per Allen, Taryn, Reda, Stephanie, Martin, Staci, Long, Phoebe, Franklin, Alexis, Bedoya, Sima Zadeh, Wiener, Lori, Wolters, Pamela L.
Publicat 2022Text -
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A Comparison of Adherence Assessment Methods Utilized in the United States: Perspectives of Researchers, HIV-Infected Children, and their Caregivers per Martin, Staci, Elliott-DeSorbo, Deborah K., Calabrese, Sarah, Wolters, Pamela L., Roby, Gregg, Brennan, Tara, Wood, Lauren V.
Publicat 2009Text -
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The Relationship Between Heart Rate Variability, Psychological Flexibility, and Pain in Neurofibromatosis Type 1 per Allen, Taryn M., Struemph, Kari L., Toledo-Tamula, Mary Anne, Wolters, Pamela L., Baldwin, Andrea, Widemann, Brigitte, Martin, Staci
Publicat 2018Text -
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Detection and characterization of neurotoxicity in cancer patients using proton MR spectroscopy per Steffen-Smith, Emilie A., Wolters, Pamela L., Albert, Paul S., Baker, Eva H., Shimoda, Kim C., Barnett, Alan S., Warren, Katherine E.
Publicat 2008Text -
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Acceptance and Commitment Therapy in Youth with Neurofibromatosis Type 1 (NF1) and Chronic Pain and Their Parents: A Pilot Study of Feasibility and Preliminary Efficacy per Martin, Staci, Wolters, Pamela L., Toledo-Tamula, Mary Anne, Schmitt, Shawn Nelson, Baldwin, Andrea, Starosta, Amy, Gillespie, Andrea, Widemann, Brigitte
Publicat 2016Text -
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Phase I trial of convection-enhanced delivery of IL13-Pseudomonas toxin in children with diffuse intrinsic pontine glioma per Heiss, John D., Jamshidi, Aria, Shah, Smit, Martin, Staci, Wolters, Pamela L., Argersinger, Davis P., Warren, Katherine E., Lonser, Russell R.
Publicat 2018Text -
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Achieving consensus for clinical trials: The REiNS International Collaboration per Plotkin, Scott R., Blakeley, Jaishri O., Dombi, Eva, Fisher, Michael J., Hanemann, C. Oliver, Walsh, Karin S., Wolters, Pamela L., Widemann, Brigitte C.
Publicat 2013Text -
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Conclusions and future directions for the REiNS International Collaboration per Widemann, Brigitte C., Blakeley, Jaishri O., Dombi, Eva, Fisher, Michael J., Hanemann, Clemens O., Walsh, Karin S., Wolters, Pamela L., Plotkin, Scott R.
Publicat 2013Text -
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Patient-reported outcomes in neurofibromatosis and schwannomatosis clinical trials per Wolters, Pamela L., Martin, Staci, Merker, Vanessa L., Gardner, Kathy L., Hingtgen, Cynthia M., Tonsgard, James H., Schorry, Elizabeth K., Baldwin, Andrea
Publicat 2013Text -
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Development and Validation of the English Pain Interference Index and Pain Interference Index-Parent Report per Martin, Staci, Schmitt, Shawn Nelson, Wolters, Pamela L., Abel, Brittany, Toledo-Tamula, Mary Anne, Baldwin, Andrea, Wicksell, Rikard K., Merchant, Melinda, Widemann, Brigitte
Publicat 2014Text -
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Predictors of cognitive development in children with neurofibromatosis type 1 and plexiform neurofibromas per HOU, YANG, ALLEN, TARYN, WOLTERS, PAMELA L, TOLEDO-TAMULA, MARY ANNE, MARTIN, STACI, BALDWIN, ANDREA, REDA, STEPHANIE, GILLESPIE, ANDY, GOODWIN, ANNE, WIDEMANN, BRIGITTE C
Publicat 2020Text -
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Pain Interference in Youth with Neurofibromatosis Type 1 and Plexiform Neurofibromas and Relation to Disease Severity, Social-Emotional Functioning, and Quality of Life per Wolters, Pamela L., Burns, Katherine M., Martin, Staci, Baldwin, Andrea, Dombi, Eva, Toledo-Tamula, Mary Anne, Dudley, William N., Gillespie, Andrea, Widemann, Brigitte C.
Publicat 2015Text -
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Enhancing Neurofibromatosis Clinical Trial Outcome Measures Through Patient Engagement: Lessons From REiNS per Merker, Vanessa L., Lessing, Andrés J., Moss, Irene, Hussey, Maureen, Oberlander, Beverly, Rose, Traceann, Thalheimer, Raquel, Wirtanen, Tracy, Wolters, Pamela L., Gross, Andrea M., Plotkin, Scott R.
Publicat 2021Text