Resultats de la cerca - WERNER-LIN, ALLISON

That eagle covering me: transitioning and connected autonomy for emerging adults with cystinosis per Doyle, Maya, Werner-Lin, Allison

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A multi-case report of the pathways to and through genetic testing and cancer risk management for BRCA mutation-positive women aged 18–25 per Hoskins, Lindsey M., Werner-Lin, Allison

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In Their Own Words: Treating Very Young BRCA1/2 Mutation-Positive Women with Care and Caution per Hoskins, Lindsey M., Werner-Lin, Allison, Greene, Mark H.

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Shifting and Intersecting Needs: Parents’ Experiences During and Following the Withdrawal of Life Sustaining Treatments in the PICU per Broden, Elizabeth G., Werner-Lin, Allison, Curley, Martha A.Q., Hinds, Pamela S.

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Leadership, Literacy, and Translational Expertise in Genomics: Challenges and Opportunities for Social Work per Werner-Lin, Allison, McCoyd, Judith L. M., Doyle, Maya H., Gehlert, Sarah J.

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“Something extra on chromosome 5”: Parents’ understanding of positive prenatal chromosomal microarray analysis (CMA) results per Walser, Sarah A., Werner-Lin, Allison, Russell, Amita, Wapner, Ronald J., Bernhardt, Barbara A.

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An Observational Study of Children’s Involvement in Informed Consent for Exome Sequencing Research per Miller, Victoria A., Werner-Lin, Allison, Walser, Sarah A., Biswas, Sawona, Bernhardt, Barbara A.

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‘My funky genetics’: BRCA1/2 mutation carriers’ understanding of genetic inheritance and reproductive merger in the context of new repro-genetic technologies per Werner-Lin, Allison, Rubin, Lisa R., Doyle, Maya, Stern, Rikki, Savin, Katie, Hurley, Karen, Sagi, Michal

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How do providers discuss the results of pediatric exome sequencing with families? per Walser, Sarah A, Werner-Lin, Allison, Mueller, Rebecca, Miller, Victoria A, Biswas, Sawona, Bernhardt, Barbara A

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Legacies and Relationships: Diverse Social Networks and BRCA1/2 Risk Management Decisions and Actions per Ersig, Anne L., Werner-Lin, Allison, Hoskins, Lindsey, Young, Jennifer, Loud, Jennifer T., Peters, June, Greene, Mark H.

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Waiting and “weighted down”: the challenge of anticipatory loss for individuals and families with Li‑Fraumeni Syndrome per Werner‑Lin, Allison, Young, Jennifer L., Wilsnack, Catherine, Merrill, Shana L., Groner, Victoria, Greene, Mark H., Khincha, Payal P.

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Embodied risk for families with Li-Fraumeni syndrome: Like electricity through my body per Werner-Lin, Allison, Shepherd, Rowan Forbes, Young, Jennifer L., Wilsnack, Catherine, Merrill, Shana L., Greene, Mark H., Khincha, Payal P.

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Incorporating information about pre-implantation genetic diagnosis into discussions about testing and risk-management for BRCA1/2 mutations: A qualitative study of patient preferen... per Hurley, Karen, Rubin, Lisa, Werner-Lin, Allison, Sagi, Michal, Kemel, Yelena, Stern, Rikki, Phillips, Aliza, Cholst, Ina, Kauff, Noah, Offit, Kenneth

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Family Identity and Roles in the Context of Li-Fraumeni Syndrome: “No One’s Like Us Mutants” per Wilsnack, Catherine, Young, Jennifer L., Merrill, Shana L., Groner, Victoria, Loud, Jennifer T., Bremer, Renee C., Greene, Mark H., Khincha, Payal P., Werner-Lin, Allison

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Couples coping with screening burden and diagnostic uncertainty in Li-Fraumeni syndrome: Connection versus independence per Young, Jennifer L., Pantaleao, Ashley, Zaspel, Lori, Bayer, Jessica, Peters, June A., Khincha, Payal P., Bremer, Renee C., Loud, Jennifer T., Greene, Mark H., Achatz, Maria Isabel, Savage, Sharon A., Werner-Lin, Allison

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Family Health Leaders: Lessons on Living with Li-Fraumeni Syndrome across Generations per PANTALEAO, ASHLEY, YOUNG, JENNIFER L., EPSTEIN, NORMAN B., CARLSON, MAE, BREMER, RENÉE C., KHINCHA, PAYAL P., PETERS, JUNE A., GREENE, MARK H., ROY, KEVIN, ACHATZ, MARIA ISABEL, SAVAGE, SHARON A., WERNER-LIN, ALLISON

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