Ngā hua rapu - Rust, Stewart

A systematic review and integrative sequential explanatory narrative synthesis: The psychosocial impact of parenting a child with a lysosomal storage disorder mā Hassall, Sadie, Smith, Debbie Michelle, Rust, Stewart, Wittkowski, Anja

Whiwhi kuputuhi katoa Whiwhi kuputuhi katoa Whiwhi kuputuhi katoa

Social Functioning and Behaviour in Mucopolysaccharidosis IH [Hurlers Syndrome] mā Lehtonen, Annukka, Rust, Stewart, Jones, Simon, Brown, Richard, Hare, Dougal

Whiwhi kuputuhi katoa Whiwhi kuputuhi katoa Whiwhi kuputuhi katoa

Treatment Adherence and Psychological Wellbeing in Maternal Carers of Children with Phenylketonuria (PKU) mā Medford, Emma, Hare, Dougal Julian, Carpenter, Katie, Rust, Stewart, Jones, Simon, Wittkowski, Anja

Whiwhi kuputuhi katoa Whiwhi kuputuhi katoa Whiwhi kuputuhi katoa

Parenting a Child with Phenylketonuria (PKU): an Interpretative Phenomenological Analysis (IPA) of the Experience of Parents mā Carpenter, Katie, Wittkowski, Anja, Hare, Dougal J., Medford, Emma, Rust, Stewart, Jones, Simon A., Smith, Debbie M.

Whiwhi kuputuhi katoa Whiwhi kuputuhi katoa Whiwhi kuputuhi katoa

Vineland adaptive behavior scales to identify neurodevelopmental problems in children with Congenital Hyperinsulinism (CHI) mā Salomon-Estebanez, Maria, Mohamed, Zainab, Michaelidou, Maria, Collins, Hannah, Rigby, Lindsey, Skae, Mars, Padidela, Raja, Rust, Stewart, Dunne, Mark, Cosgrove, Karen, Banerjee, Indraneel, Nicholson, Jacqueline

Whiwhi kuputuhi katoa Whiwhi kuputuhi katoa Whiwhi kuputuhi katoa

Recommendations on clinical trial design for treatment of Mucopolysaccharidosis Type III mā Ghosh, Arunabha, Shapiro, Elsa, Rust, Stewart, Delaney, Kathleen, Parker, Samantha, Shaywitz, Adam J, Morte, Adelaida, Bubb, Gillian, Cleary, Maureen, Bo, Tien, Lavery, Christine, Bigger, Brian W, Jones, Simon A

Whiwhi kuputuhi katoa Whiwhi kuputuhi katoa Whiwhi kuputuhi katoa