検索結果 - Rust, Stewart

A systematic review and integrative sequential explanatory narrative synthesis: The psychosocial impact of parenting a child with a lysosomal storage disorder 著者: Hassall, Sadie, Smith, Debbie Michelle, Rust, Stewart, Wittkowski, Anja

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Social Functioning and Behaviour in Mucopolysaccharidosis IH [Hurlers Syndrome] 著者: Lehtonen, Annukka, Rust, Stewart, Jones, Simon, Brown, Richard, Hare, Dougal

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Treatment Adherence and Psychological Wellbeing in Maternal Carers of Children with Phenylketonuria (PKU) 著者: Medford, Emma, Hare, Dougal Julian, Carpenter, Katie, Rust, Stewart, Jones, Simon, Wittkowski, Anja

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Parenting a Child with Phenylketonuria (PKU): an Interpretative Phenomenological Analysis (IPA) of the Experience of Parents 著者: Carpenter, Katie, Wittkowski, Anja, Hare, Dougal J., Medford, Emma, Rust, Stewart, Jones, Simon A., Smith, Debbie M.

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Vineland adaptive behavior scales to identify neurodevelopmental problems in children with Congenital Hyperinsulinism (CHI) 著者: Salomon-Estebanez, Maria, Mohamed, Zainab, Michaelidou, Maria, Collins, Hannah, Rigby, Lindsey, Skae, Mars, Padidela, Raja, Rust, Stewart, Dunne, Mark, Cosgrove, Karen, Banerjee, Indraneel, Nicholson, Jacqueline

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Recommendations on clinical trial design for treatment of Mucopolysaccharidosis Type III 著者: Ghosh, Arunabha, Shapiro, Elsa, Rust, Stewart, Delaney, Kathleen, Parker, Samantha, Shaywitz, Adam J, Morte, Adelaida, Bubb, Gillian, Cleary, Maureen, Bo, Tien, Lavery, Christine, Bigger, Brian W, Jones, Simon A

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