Resultados da busca - Quitmann, Julia

Quality of life as patient-reported outcomes: principles of assessment por Bullinger, Monika, Quitmann, Julia

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Health-Related Quality of Life of Children and Adolescents With Congenital Hyperinsulinism – A Scoping Review por Kristensen, Kaja, Quitmann, Julia, Witt, Stefanie

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Parent-Child Assessment of Strengths and Difficulties of German Children and Adolescents Born With Esophageal Atresia por Witt, Stefanie, Dingemann, Jens, Dellenmark-Blom, Michaela, Quitmann, Julia

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Need for transition medicine in pediatric surgery – health related quality of life in adolescents and young adults with congenital malformations por Uecker, Marie, Ure, Benno, Quitmann, Julia Hannah, Dingemann, Jens

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Explaining parent-child (dis)agreement in generic and short stature-specific health-related quality of life reports: do family and social relationships matter? por Quitmann, Julia, Rohenkohl, Anja, Sommer, Rachel, Bullinger, Monika, Silva, Neuza

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Quality of life of children with achondroplasia and their parents - a German cross-sectional study por Witt, Stefanie, Kolb, Beate, Bloemeke, Janika, Mohnike, Klaus, Bullinger, Monika, Quitmann, Julia

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Comparison of Quality of Life Responses From Caregiver and Children Aged ≥7 Years Using the Quality of Life in Short Stature Youth (QoLISSY) Questionnaire, Following 12 Months of G... por Loftus, Jane, Quitmann, Julia, Valluri, Srinivas, Pastrak, Aleksandra, Reiter, Lawrence, Roland, Carl

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Psychometric properties of the quality of life in short statured youth (QoLISSY) questionnaire within the course of growth hormone treatment por Bloemeke, Janika, Silva, Neuza, Bullinger, Monika, Witt, Stefanie, Dörr, Helmuth-Günther, Quitmann, Julia

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Agreement between mothers’, fathers’, and children’s’ ratings on health-related quality of life in children born with esophageal atresia – a German cross-sectional study por Witt, Stefanie, Bloemeke, Janika, Bullinger, Monika, Dingemann, Jens, Dellenmark-Blom, Michaela, Quitmann, Julia

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Associations between Psychological Problems and Quality of Life in Pediatric Short Stature from Patients’ and Parents’ Perspectives por Quitmann, Julia Hannah, Bullinger, Monika, Sommer, Rachel, Rohenkohl, Anja Christine, Bernardino Da Silva, Neuza Maria

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Reliability and Validity of the Polish Version of the Esophageal-Atresia-Quality-of-Life Questionnaires to Assess Condition-Specific Quality of Life in Children and Adolescents Bor... por Rozensztrauch, Anna, Śmigiel, Robert, Patkowski, Dariusz, Gerus, Sylwester, Kłaniewska, Magdalena, Quitmann, Julia Hannah, Dellenmark-Blom, Michaela

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Rare pediatric diseases and pathways to psychosocial care: a qualitative interview study with professional experts working with affected families in Germany por Witt, Stefanie, Kristensen, Kaja, Wiegand-Grefe, Silke, Boettcher, Johannes, Bloemeke, Janika, Wingartz, Christina, Bullinger, Monika, Quitmann, Julia

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Evaluation of the American-English Quality of Life in Short Stature Youth (QoLISSY) questionnaire in the United States por Bullinger, Monika, Sommer, Rachel, Pleil, Andreas, Mauras, Nelly, Ross, Judith, Newfield, Ron, Silverman, Lawrence, Rohenkohl, Anja, Fox, Janet, Quitmann, Julia

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Feasibility, Reliability, and Validity of the Turkish Version of the Esophageal-Atresia-Quality-of-Life Questionnaires to Assess Condition-Specific Quality of Life in Children and... por Soyer, Tutku, Ece Arslan, Umut, Ulukaya Durakbaşa, Çiğdem, Aydöner, Sinem, Boybeyi-Türer, Özlem, H Quitmann, Julia, Dingemann, Jens, Dellenmark-Blom, Michaela

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Living with Intoxication-Type Inborn Errors of Metabolism: A Qualitative Analysis of Interviews with Paediatric Patients and Their Parents por Zeltner, Nina A., Landolt, Markus A., Baumgartner, Matthias R., Lageder, Sarah, Quitmann, Julia, Sommer, Rachel, Karall, Daniela, Mühlhausen, Chris, Schlune, Andrea, Scholl-Bürgi, Sabine, Huemer, Martina

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Factors of family impact in a Swedish–German cohort of children born with esophageal atresia por Dellenmark-Blom, Michaela, Abrahamsson, Kate, Dingemann, Jens, Witt, Stefanie, Dingemann, Carmen, Jönsson, Linus, Gatzinsky, Vladimir, Bullinger, Monika, Ure, Benno M., Chaplin, John E., Quitmann, Julia H.

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Parent–child-agreement on health-related quality of life and its determinants in patients born with Esophageal Atresia: a Swedish–German cross-sectional study por Witt, Stefanie, Dellenmark-Blom, Michaela, Kuckuck, Susanne, Dingemann, Jens, Abrahamsson, Kate, Dingemann, Carmen, Chaplin, John Eric, Ure, Benno, Bullinger, Monika, Gatzinsky, Vladimir, Jönsson, Linus, Quitmann, Julia Hannah

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Development and Psychometric Evaluation of the MetabQoL 1.0: A Quality of Life Questionnaire for Paediatric Patients with Intoxication-Type Inborn Errors of Metabolism por Zeltner, Nina A., Baumgartner, Matthias R., Bondarenko, Aljona, Ensenauer, Regina, Karall, Daniela, Kölker, Stefan, Mühlhausen, Chris, Scholl-Bürgi, Sabine, Thimm, Eva, Quitmann, Julia, Burgard, Peter, Landolt, Markus A., Huemer, Martina

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Assessing the quality of life of health-referred children and adolescents with short stature: development and psychometric testing of the QoLISSY instrument por Bullinger, Monika, Quitmann, Julia, Power, Mick, Herdman, Michael, Mimoun, Emmanuelle, DeBusk, Kendra, Feigerlova, Eva, Lunde, Carolina, Dellenmark-Blom, Maria, Sanz, Dolores, Rohenkohl, Anja, Pleil, Andreas, Wollmann, Hartmut, Chaplin, John E

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Quality of Life of Short-Statured Children Born Small for Gestational Age or Idiopathic Growth Hormone Deficiency Within 1 Year of Growth Hormone Treatment por Quitmann, Julia, Bloemeke, Janika, Silva, Neuza, Bullinger, Monika, Witt, Stefanie, Akkurt, Ilker, Dunstheimer, Desiree, Vogel, Christian, Böttcher, Volker, Kuhnle Krahl, Ursula, Bettendorf, Markus, Schönau, Eckhard, Fricke-Otto, Susanne, Keller, Alexandra, Mohnike, Klaus, Dörr, Helmuth-Günther

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