Výsledky vyhledávání - O’Mahony, Brian

Communication in the year 2000 Autor O'Mahony, Brian

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The Dublin Consensus Statement 2012 on optimised supply of plasma-derived medicinal products Autor O'Mahony, Brian

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How to discuss gene therapy for haemophilia? A patient and physician perspective Autor Miesbach, Wolfgang, O’Mahony, Brian, Key, Nigel S., Makris, Mike

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Issues in assessing products for the treatment of hemophilia – the intersection between efficacy, economics, and ethics Autor Farrugia, Albert, Noone, Declan, Schlenkrich, Uwe, Schlenkrich, Steffen, O’Mahony, Brian, Cassar, Josephine

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Eliminating Panglossian thinking in development of AAV therapeutics Autor Kaczmarek, Radoslaw, Pierce, Glenn F., Noone, Declan, O'Mahony, Brian, Page, David, Skinner, Mark W.

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Achieving the unimaginable: Health equity in haemophilia Autor Skinner, Mark W., Nugent, Diane, Wilton, Pam, O’Mahony, Brian, Dolan, Gerry, O’Hara, Jamie, Berntorp, Erik

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A systematic review of physical activity in people with haemophilia and its relationship with bleeding phenotype and treatment regimen Autor Kennedy, Megan, O’Gorman, Philip, Monaghan, Ann, Lavin, Michelle, O’Mahony, Brian, O’Connell, Niamh M., O’ Donnell, James S., Turecek, Peter L., Gormley, John

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Psychometric properties of the Patient Reported Outcomes, Burdens and Experiences (PROBE) questionnaire Autor Chai-Adisaksopha, Chatree, Skinner, Mark W, Curtis, Randall, Frick, Neil, Nichol, Michael B, Noone, Declan, O’Mahony, Brian, Page, David, Stonebraker, Jeffrey, Thabane, Lehana, Crowther, Mark, Iorio, Alfonso

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Core data set on safety, efficacy, and durability of hemophilia gene therapy for a global registry: Communication from the SSC of the ISTH Autor Konkle, Barbara, Pierce, Glen, Coffin, Donna, Naccache, Mayss, Clark, R. Cary, George, Lindsey, Iorio, Alfonso, O’Mahony, Brian, Pipe, Steven, Skinner, Mark, Watson, Crystal, Peyvandi, Flora, Mahlangu, Johnny

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Evidence of a disability paradox in patient‐reported outcomes in haemophilia Autor O’Hara, Jamie, Martin, Antony P., Nugent, Diane, Witkop, Michelle, Buckner, Tyler W., Skinner, Mark W., O’Mahony, Brian, Mulhern, Brendan, Morgan, George, Li, Nanxin, Sawyer, Eileen K.

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Kreuth V initiative: European consensus proposals for treatment of hemophilia using standard products, extended half-life coagulation factor concentrates and non-replacement therap... Autor Peyvandi, Flora, Berger, Karin, Seitz, Rainer, Hilger, Anneliese, Hecquet, Marie-Laure, Wierer, Michael, Buchheit, Karl-Heinz, O’Mahony, Brian, Bok, Amanda, Makris, Mike, Mansmann, Ulrich, Schramm, Wolfgang, Mannucci, Pier Mannuccio

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Recombinant factor IX‐Fc fusion protein in severe hemophilia B: Patient‐reported outcomes and health‐related quality of life Autor O’Donovan, Mairead, Quinn, Eimear, Johnston, Kate, Singleton, Evelyn, Benson, Julie, O'Mahony, Brian, Noone, Declan, Duggan, Cleona, Gilmore, Ruth, Ryan, Kevin, O'Donnell, James S., O’Connell, Niamh M., Mahlangu, Johnny

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Pain and functional disability amongst adults with moderate and severe haemophilia from the Irish personalised approach to the treatment of haemophilia (iPATH) study Autor Kennedy, Megan, O’ Mahony, Brian, Roche, Sheila, McGowan, Mark, Singleton, Evelyn, Ryan, Kevin, O’ Connell, Niamh M., Pipe, Steven W., Lavin, Michelle, O’ Donnell, James S., Turecek, Peter L., Gormley, John

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Patient preferences and priorities for haemophilia gene therapy in the US: A discrete choice experiment Autor Witkop, Michelle, Morgan, George, O'Hara, Jamie, Recht, Michael, Buckner, Tyler W., Nugent, Diane, Curtis, Randall, O'Mahony, Brian, Skinner, Mark W., Mulhern, Brendan, Cawson, Matthew, Ali, Talaha M., Sawyer, Eileen K., Li, Nanxin

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Vaccination against COVID‐19: Rationale, modalities and precautions for patients with haemophilia and other inherited bleeding disorders Autor Kaczmarek, Radoslaw, El Ekiaby, Magdy, Hart, Daniel P., Hermans, Cedric, Makris, Mike, Noone, Declan, O’Mahony, Brian, Page, David, Peyvandi, Flora, Pipe, Steven W., Sannié, Thomas, Schlenkrich, Uwe, Skinner, Mark W., Srivastava, Alok, Bok, Amanda, Pierce, Glenn F.

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World Federation of Hemophilia Gene Therapy Registry Autor Konkle, Barbara A., Coffin, Donna, Pierce, Glenn F., Clark, Cary, George, Lindsey, Iorio, Alfonso, Mahlangu, Johnny, Naccache, Mayss, O’Mahony, Brian, Peyvandi, Flora, Pipe, Steve, Quartel, Adrian, Sawyer, Eileen K., Skinner, Mark W., Tortella, Bartholomew, Watson, Crystal, Winburn, Ian

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Telehealth for delivery of haemophilia comprehensive care during the COVID‐19 pandemic Autor O’Donovan, Mairead, Buckley, Catherine, Benson, Julie, Roche, Sheila, McGowan, Mark, Parkinson, Laura, Byrne, Patricia, Rooney, Gloria, Bergin, Catherine, Walsh, Deirdre, Bird, Rachel, McGroarty, Feargal, Fogarty, Helen, Smyth, Elizabeth, Ahmed, Saad, O’Donnell, James S., Ryan, Kevin, O'Mahony, Brian, Dougall, Alison, O’Connell, Niamh M.

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Patient‐relevant health outcomes for hemophilia care: Development of an international standard outcomes set Autor van Balen, Erna C., O'Mahony, Brian, Cnossen, Marjon H., Dolan, Gerard, Blanchette, Victor S., Fischer, Kathelijn, Gue, Deborah, O'Hara, Jamie, Iorio, Alfonso, Jackson, Shannon, Konkle, Barbara A., Nugent, Diane J., Coffin, Donna, Skinner, Mark W., Smit, Cees, Srivastava, Alok, van Eenennaam, Fred, van der Bom, Johanna G., Gouw, Samantha C.

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