Хайлтын үр дүнгүүд - Mascalzoni, Deborah

Digital Biomarkers in Psychiatric Research: Data Protection Qualifications in a Complex Ecosystem -н Parziale, Andrea, Mascalzoni, Deborah

Бүрэн текст авах Бүрэн текст авах Бүрэн текст авах

Rare disease research: Breaking the privacy barrier -н Mascalzoni, Deborah, Paradiso, Angelo, Hansson, Matts

Бүрэн текст авах Бүрэн текст авах Бүрэн текст авах

The GDPR and the research exemption: considerations on the necessary safeguards for research biobanks -н Staunton, Ciara, Slokenberga, Santa, Mascalzoni, Deborah

Бүрэн текст авах Бүрэн текст авах Бүрэн текст авах

Italian public’s views on sharing genetic information and medical information: findings from the ‘Your DNA, Your Say’ study -н Romano, Virginia, Milne, Richard, Mascalzoni, Deborah

Бүрэн текст авах Бүрэн текст авах Бүрэн текст авах

Informed Consent in the Genomics Era -н Mascalzoni, Deborah, Hicks, Andrew, Pramstaller, Peter, Wjst, Matthias

Бүрэн текст авах Бүрэн текст авах Бүрэн текст авах

Appropriate Safeguards and Article 89 of the GDPR: Considerations for Biobank, Databank and Genetic Research -н Staunton, Ciara, Slokenberga, Santa, Parziale, Andrea, Mascalzoni, Deborah

Бүрэн текст авах Бүрэн текст авах Бүрэн текст авах

What ethical approaches are used by scientists when sharing health data? An interview study -н Viberg Johansson, Jennifer, Bentzen, Heidi Beate, Mascalzoni, Deborah

Бүрэн текст авах Бүрэн текст авах Бүрэн текст авах

Return of research results (RoRR) to the healthy CHRIS cohort: designing a policy with the participants -н Staunton, Ciara, Kösters, Maria, Pramstaller, Peter P., Mascalzoni, Deborah

Бүрэн текст авах Бүрэн текст авах Бүрэн текст авах

Legal issues in governing genetic biobanks: the Italian framework as a case study for the implications for citizen’s health through public-private initiatives -н Piciocchi, Cinzia, Ducato, Rossana, Martinelli, Lucia, Perra, Silvia, Tomasi, Marta, Zuddas, Carla, Mascalzoni, Deborah

Бүрэн текст авах Бүрэн текст авах Бүрэн текст авах

‘You should at least ask'. The expectations, hopes and fears of rare disease patients on large-scale data and biomaterial sharing for genomics research -н McCormack, Pauline, Kole, Anna, Gainotti, Sabina, Mascalzoni, Deborah, Molster, Caron, Lochmüller, Hanns, Woods, Simon

Бүрэн текст авах Бүрэн текст авах Бүрэн текст авах

How to responsibly acknowledge research work in the era of big data and biobanks: ethical aspects of the Bioresource Research Impact Factor (BRIF) -н Howard, Heidi Carmen, Mascalzoni, Deborah, Mabile, Laurence, Houeland, Gry, Rial-Sebbag, Emmanuelle, Cambon-Thomsen, Anne

Бүрэн текст авах Бүрэн текст авах Бүрэн текст авах

Meeting Patients’ Right to the Correct Diagnosis: Ongoing International Initiatives on Undiagnosed Rare Diseases and Ethical and Social Issues -н Gainotti, Sabina, Mascalzoni, Deborah, Bros-Facer, Virginie, Petrini, Carlo, Floridia, Giovanna, Roos, Marco, Salvatore, Marco, Taruscio, Domenica

Бүрэн текст авах Бүрэн текст авах Бүрэн текст авах

Preferences of the Public for Sharing Health Data: Discrete Choice Experiment -н Viberg Johansson, Jennifer, Bentzen, Heidi Beate, Shah, Nisha, Haraldsdóttir, Eik, Jónsdóttir, Guðbjörg Andrea, Kaye, Jane, Mascalzoni, Deborah, Veldwijk, Jorien

Бүрэн текст авах Бүрэн текст авах Бүрэн текст авах

Improving the informed consent process in international collaborative rare disease research: effective consent for effective research -н Gainotti, Sabina, Turner, Cathy, Woods, Simon, Kole, Anna, McCormack, Pauline, Lochmüller, Hanns, Riess, Olaf, Straub, Volker, Posada, Manuel, Taruscio, Domenica, Mascalzoni, Deborah

Бүрэн текст авах Бүрэн текст авах Бүрэн текст авах

Comparison of participant information and informed consent forms of five European studies in genetic isolated populations -н Mascalzoni, Deborah, Janssens, A Cecile JW, Stewart, Alison, Pramstaller, Peter, Gyllensten, Ulf, Rudan, Igor, van Duijn, Cornelia M, Wilson, James F, Campbell, Harry, Quillan, Ruth Mc

Бүрэн текст авах Бүрэн текст авах Бүрэн текст авах

International Charter of principles for sharing bio-specimens and data -н Mascalzoni, Deborah, Dove, Edward S, Rubinstein, Yaffa, Dawkins, Hugh J S, Kole, Anna, McCormack, Pauline, Woods, Simon, Riess, Olaf, Schaefer, Franz, Lochmüller, Hanns, Knoppers, Bartha M, Hansson, Mats

Бүрэн текст авах Бүрэн текст авах Бүрэн текст авах

International Charter of principles for sharing bio-specimens and data -н Mascalzoni, Deborah, Dove, Edward S, Rubinstein, Yaffa, Dawkins, Hugh JS, Kole, Anna, McCormack, Pauline, Woods, Simon, Riess, Olaf, Schaefer, Franz, Lochmüller, Hanns, Knoppers, Bartha M, Hansson, Mats

Бүрэн текст авах Бүрэн текст авах Бүрэн текст авах

Data in question: A survey of European biobank professionals on ethical, legal and societal challenges of biobank research -н Goisauf, Melanie, Martin, Gillian, Bentzen, Heidi Beate, Budin-Ljøsne, Isabelle, Ursin, Lars, Durnová, Anna, Leitsalu, Liis, Smith, Katharine, Casati, Sara, Lavitrano, Marialuisa, Mascalzoni, Deborah, Boeckhout, Martin, Mayrhofer, Michaela Th.

Бүрэн текст авах Бүрэн текст авах Бүрэн текст авах

Correction: Data in question: A survey of European biobank professionals on ethical, legal and societal challenges of biobank research -н Goisauf, Melanie, Martin, Gillian, Bentzen, Heidi Beate, Budin-Ljøsne, Isabelle, Ursin, Lars, Durnová, Anna, Leitsalu, Liis, Smith, Katharine, Casati, Sara, Lavitrano, Marialuisa, Mascalzoni, Deborah, Boeckhout, Martin, Mayrhofer, Michaela Th

Бүрэн текст авах Бүрэн текст авах Бүрэн текст авах

Balancing scientific interests and the rights of participants in designing a recall by genotype study -н Mascalzoni, Deborah, Biasiotto, Roberta, Borsche, Max, Brüggemann, Norbert, De Grandi, Alessandro, Goegele, Martin, Frygner-Holm, Sara, Klein, Christine, Kösters, Maria, Staunton, Ciara, Pramstaller, Peter P., Krawczak, Michael, Hicks, Andrew A.

Бүрэн текст авах Бүрэн текст авах Бүрэн текст авах