檢索結果 - Mahsa Shabani

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  1. 1
    Blockchain-based platforms for genomic data sharing: a de-centralized approach in response to the governance problems?

    Blockchain-based platforms for genomic data sharing: a de-centralized approach in response to the governance problems? 由 Mahsa Shabani

    出版 2018
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  2. 2
    Rules for processing genetic data for research purposes in view of the new EU General Data Protection Regulation

    Rules for processing genetic data for research purposes in view of the new EU General Data Protection Regulation 由 Mahsa Shabani, Pascal Borry

    出版 2017
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  3. 3
    DNA Data Marketplace: An Analysis of the Ethical Concerns Regarding the Participation of the Individuals

    DNA Data Marketplace: An Analysis of the Ethical Concerns Regarding the Participation of the Individuals 由 Eman Ahmed, Mahsa Shabani

    出版 2019
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  4. 4
    From the principles of genomic data sharing to the practices of data access committees

    From the principles of genomic data sharing to the practices of data access committees 由 Mahsa Shabani, Bartha Maria Knoppers, Pascal Borry

    出版 2015
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  5. 5
    Controlled Access under Review: Improving the Governance of Genomic Data Access

    Controlled Access under Review: Improving the Governance of Genomic Data Access 由 Mahsa Shabani, Stephanie O. M. Dyke, Yann Joly, Pascal Borry

    出版 2015
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  6. 6
    Ethical and social reflections on the proposed European Health Data Space

    Ethical and social reflections on the proposed European Health Data Space 由 Ciara Staunton, Mahsa Shabani, Deborah Mascalzoni, Signe Mežinska, Santa Slokenberga

    出版 2024
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  7. 7
    Ethics review for international data-intensive research

    Ethics review for international data-intensive research 由 Edward S. Dove, David Townend, Eric M. Meslin, Martin Bobrow, Katherine Littler, Dianne Nicol, Jantina de Vries, Anne Junker, Chiara Garattini, Jasper Bovenberg, Mahsa Shabani, Emmanuelle Lévesque, Bartha Maria Knoppers

    出版 2016
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  8. 8
    Ethics review of big data research: What should stay and what should be reformed?

    Ethics review of big data research: What should stay and what should be reformed? 由 Agata Ferretti, Marcello Ienca, Mark Sheehan, Alessandro Blasimme, Edward S. Dove, Bobbie Farsides, Phoebe Friesen, Jeff Kahn, Walter Karlen, Peter Kleist, S. Matthew Liao, Camille Nebeker, Gabrielle Samuel, Mahsa Shabani, Minerva Rivas Velarde, Effy Vayena

    出版 2021
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  9. 9
    The challenges of the expanded availability of genomic information: an agenda-setting paper

    The challenges of the expanded availability of genomic information: an agenda-setting paper 由 Pascal Borry, Heidi Beate Bentzen, Isabelle Budin‐Ljøsne, Martina C. Cornel, Heidi Howard, Oliver Feeney, Leigh Jackson, Deborah Mascalzoni, Álvaro Mendes, Borut Peterlin, Brígida Riso, Mahsa Shabani, Heather Skirton, Sigrid Sterckx, Danya F. Vears, Matthias Wjst, Heike Felzmann

    出版 2017
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  10. 10
    Reconciling the biomedical data commons and the GDPR: three lessons from the EUCAN ELSI collaboratory

    Reconciling the biomedical data commons and the GDPR: three lessons from the EUCAN ELSI collaboratory 由 Alexander Bernier, Fruzsina Molnár‐Gábor, Bartha Maria Knoppers, Pascal Borry, Priscilla M. D. G. Cesar, Thijs Devriendt, Melanie Goisauf, Madeleine J. Murtagh, Pilar Nicolás Jiménez, Mikel Recuero, Emmanuelle Rial‐Sebbag, Mahsa Shabani, Rebecca Wilson, Davide Zaccagnini, Lauren Maxwell

    出版 2023
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  11. 11
    Are Requirements to Deposit Data in Research Repositories Compatible With the European Union's General Data Protection Regulation?

    Are Requirements to Deposit Data in Research Repositories Compatible With the European Union's General Data Protection Regulation? 由 Deborah Mascalzoni, Heidi Beate Bentzen, Isabelle Budin‐Ljøsne, Lee A. Bygrave, Jessica Bell, Edward S. Dove, Christian Fuchsberger, Kristian Hveem, Michaela Th. Mayrhofer, Viviana Meraviglia, David R. O’Brien, Cristian Pattaro, Peter P. Pramstaller, Vojin Rakić, Alessandra Rossini, Mahsa Shabani, Dan Jerker B. Svantesson, Marta Tomasi, Lars Ursin, Matthias Wjst, Jane Kaye

    出版 2019
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  12. 12
    Toward better governance of human genomic data

    Toward better governance of human genomic data 由 Kieran C. O’Doherty, Mahsa Shabani, Edward S. Dove, Heidi Beate Bentzen, Pascal Borry, Michael Burgess, Drc Chalmers, Jantina de Vries, Lisa Eckstein, Stephanie M. Fullerton, Eric T. Juengst, Yoshihiro Kato, Jane Kaye, Bartha Maria Knoppers, Barbara A. Koenig, Spero M. Manson, Kimberlyn McGrail, Amy L. McGuire, Eric M. Meslin, Dianne Nicol, Barbara Prainsack, Sharon F. Terry, Adrian Thorogood, Wylie Burke

    出版 2021
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  13. 13
    A review of the key issues associated with the commercialization of biobanks

    A review of the key issues associated with the commercialization of biobanks 由 Timothy Caulfield, Sarah Burningham, Yann Joly, Zubin Master, Mahsa Shabani, Pascal Borry, Allan B. Becker, Michael Burgess, Kathryn Calder, Christine Critchley, Kelly Edwards, Stephanie M. Fullerton, Herbert Gottweis, Robyn Hyde-Lay, Judy Illes, Rosario Isasi, Yoshihiro Kato, Jane Kaye, Bartha Maria Knoppers, John Lynch, Amy L. McGuire, Eric M. Meslin, Dianne Nicol, Kieran C. O’Doherty, Ubaka Ogbogu, Margaret Otlowski, Daryl Pullman, Nola M. Ries, Chris Scott, Malcolm R. Sears, Helen M. Wallace, Ma’n H. Zawati

    出版 2014
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  14. 14
    Registered access: authorizing data access

    Registered access: authorizing data access 由 Stephanie O. M. Dyke, Mikael Lindén, Ilkka Lappalainen, Jordi Rambla, Knox Carey, David Lloyd, Dylan Spalding, Moran N. Cabili, Giselle Kerry, Julia Foreman, Tim Cutts, Mahsa Shabani, Laura Lyman Rodriguez, Maximilian Haeussler, Brian Walsh, Xiaoqian Jiang, Shuang Wang, Daniel Perrett, Tiffany Boughtwood, Andreas Matern, Anthony J. Brookes, Miro Cupak, Marc Fiume, Ravi Pandya, Ilia Tulchinsky, Serena Scollen, Juha Törnroos, Samir Das, Alan C. Evans, Bradley Malin, Stephan Beck, Steven E. Brenner, Tommi Nyrönen, Niklas Blomberg, Helen V. Firth, Matthew E. Hurles, Anthony Philippakis, Gunnar Rätsch, Michael Brudno, Kym M. Boycott, Heidi L. Rehm, Michael Baudis, Stephen T. Sherry, Yoshihiro Kato, Bartha Maria Knoppers, Dixie B. Baker, Paul Flicek

    出版 2018
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  15. 15
    FUTURE-AI: international consensus guideline for trustworthy and deployable artificial intelligence in healthcare

    FUTURE-AI: international consensus guideline for trustworthy and deployable artificial intelligence in healthcare 由 Karim Lekadir, Alejandro F. Frangi, Antonio R. Porras, Ben Glocker, Celia Cintas, Curtis P. Langlotz, Eva Weicken, Folkert W. Asselbergs, Fred Prior, Gary S. Collins, Georgios Kaissis, Gianna Tsakou, Irène Buvat, Jayashree Kalpathy-Cramer, John Mongan, Julia A. Schnabel, Kaisar Kushibar, Katrine Riklund, Kostas Marias, Lameck Mbangula Amugongo, Lauren A. Fromont, Klaus Maier‐Hein, Leonor Cerdá-Alberich, Luis Martí‐Bonmatí, M. Jorge Cardoso, Maciej Bobowicz, Mahsa Shabani, Manolis Tsiknakis, María A. Zuluaga, Marie-Christine Fritzsche, Marina Camacho, Marius George Linguraru, Markus Wenzel, Marleen de Bruijne, Martin G. Tolsgaard, Melanie Goisauf, Mónica Cano Abadía, Nick Papanikolaou, Noussair Lazrak, Oriol Pujol, Richard Osuala, Sandy Napel, Sara Colantonio, Smriti Joshi, Stefan Klein, Susanna Aussò, Wendy Rogers, Zohaib Salahuddin, Martijn P. A. Starmans

    出版 2025
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