检索结果 - Julie A. Panepinto

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  1. 1
    Patient-reported outcomes in clinical practice

    Patient-reported outcomes in clinical practice 由 Sarah Dobrozsi, Julie A. Panepinto

    出版 2015
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    Artigo
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  2. 2
    Hydroxyurea use in sickle cell disease: the battle with low prescription rates, poor patient compliance and fears of toxicities

    Hydroxyurea use in sickle cell disease: the battle with low prescription rates, poor patient compliance and fears of toxicities 由 Amanda M. Brandow, Julie A. Panepinto

    出版 2010
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    Editorial
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  3. 3
    Development of the PedsQL™ sickle cell disease module items: qualitative methods

    Development of the PedsQL™ sickle cell disease module items: qualitative methods 由 Julie A. Panepinto, Sylvia Torres, James W. Varni

    出版 2011
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  4. 4
    Differences in Health-Related Quality of Life in Children With Sickle Cell Disease Receiving Hydroxyurea

    Differences in Health-Related Quality of Life in Children With Sickle Cell Disease Receiving Hydroxyurea 由 Courtney D. Thornburg, Agustin Calatroni, Julie A. Panepinto

    出版 2011
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  5. 5
    COVID-19 in individuals with sickle cell disease/trait compared with other Black individuals

    COVID-19 in individuals with sickle cell disease/trait compared with other Black individuals 由 Ashima Singh, Amanda M. Brandow, Julie A. Panepinto

    出版 2021
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  6. 6
    Early insights into the neurobiology of pain in sickle cell disease: A systematic review of the literature

    Early insights into the neurobiology of pain in sickle cell disease: A systematic review of the literature 由 Amanda M. Brandow, Rebecca A. Farley, Julie A. Panepinto

    出版 2015
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    Revisão
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  7. 7
    Neuropathic pain in patients with sickle cell disease

    Neuropathic pain in patients with sickle cell disease 由 Amanda M. Brandow, Rebecca A. Farley, Julie A. Panepinto

    出版 2013
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  8. 8
    Hydroxyurea in children with sickle cell disease: Practice patterns and barriers to utilization

    Hydroxyurea in children with sickle cell disease: Practice patterns and barriers to utilization 由 Amanda M. Brandow, Danielle L. Jirovec, Julie A. Panepinto

    出版 2010
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  9. 9
    A psychometric evaluation of the PedsQL™ Family Impact Module in parents of children with sickle cell disease

    A psychometric evaluation of the PedsQL™ Family Impact Module in parents of children with sickle cell disease 由 Julie A. Panepinto, Raymond G. Hoffmann, Nicholas M. Pajewski

    出版 2009
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  10. 10
    Clinically Meaningful Interpretation of Pediatric Health-related Quality of Life in Sickle Cell Disease

    Clinically Meaningful Interpretation of Pediatric Health-related Quality of Life in Sickle Cell Disease 由 Lauren M. Beverung, James W. Varni, Julie A. Panepinto

    出版 2014
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  11. 11
    The number of people with sickle‐cell disease in the United States: national and state estimates

    The number of people with sickle‐cell disease in the United States: national and state estimates 由 David C. Brousseau, Julie A. Panepinto, Mark Nimmer, Raymond G. Hoffmann

    出版 2009
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  12. 12
    Vaso‐occlusive painful events in sickle cell disease: Impact on child well‐being

    Vaso‐occlusive painful events in sickle cell disease: Impact on child well‐being 由 Amanda M. Brandow, David C. Brousseau, Nicholas M. Pajewski, Julie A. Panepinto

    出版 2009
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  13. 13
    The Performance of the PedsQL Generic Core Scales in Children With Sickle Cell Disease

    The Performance of the PedsQL Generic Core Scales in Children With Sickle Cell Disease 由 Julie A. Panepinto, Nicholas M. Pajewski, Lisa M. Foerster, Raymond G. Hoffmann

    出版 2008
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  14. 14
    Impact of family income and sickle cell disease on the health-related quality of life of children

    Impact of family income and sickle cell disease on the health-related quality of life of children 由 Julie A. Panepinto, Nicholas M. Pajewski, Lisa M. Foerster, Svapna Sabnis, Raymond G. Hoffmann

    出版 2008
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  15. 15
    When children with sickle‐cell disease become adults: Lack of outpatient care leads to increased use of the emergency department

    When children with sickle‐cell disease become adults: Lack of outpatient care leads to increased use of the emergency department 由 Bradd G. Hemker, David C. Brousseau, Ke Yan, Raymond G. Hoffmann, Julie A. Panepinto

    出版 2011
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  16. 16
    Impact of pediatric cancer on family relationships

    Impact of pediatric cancer on family relationships 由 Craig Erker, Ke Yan, Liyun Zhang, Kristin Bingen, Kathryn E. Flynn, Julie A. Panepinto

    出版 2018
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  17. 17
    Patients with sickle cell disease have increased sensitivity to cold and heat

    Patients with sickle cell disease have increased sensitivity to cold and heat 由 Amanda M. Brandow, Cheryl L. Stucky, Cheryl A. Hillery, Raymond G. Hoffmann, Julie A. Panepinto

    出版 2012
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  18. 18
    Health‐related quality of life in children with sickle cell disease: child and parent perception

    Health‐related quality of life in children with sickle cell disease: child and parent perception 由 Julie A. Panepinto, Kerry M. O’Mahar, Michael R. DeBaun, Fausto R. Loberiza, John P. Scott

    出版 2005
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  19. 19
    A Prospective Study of Parent Health-Related Quality of Life before and after Discharge from the Neonatal Intensive Care Unit

    A Prospective Study of Parent Health-Related Quality of Life before and after Discharge from the Neonatal Intensive Care Unit 由 Sarah McAndrew, Krishna Acharya, Jacqueline Westerdahl, David C. Brousseau, Julie A. Panepinto, Pippa Simpson, Jonathan Leuthner, Joanne Lagatta

    出版 2019
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  20. 20
    The impact on quality of life on families of children on an elimination diet for Non-immunoglobulin E mediated gastrointestinal food allergies

    The impact on quality of life on families of children on an elimination diet for Non-immunoglobulin E mediated gastrointestinal food allergies 由 Rosan Meyer, Heather Godwin, Robert Dziubak, Julie A. Panepinto, Ru-Xin M. Foong, Mandy Bryon, Adriana Chebar Lozinsky, Kate Reeve, Neil Shah

    出版 2017
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