Resultats de la cerca - Julie A. Panepinto

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  1. 1
    Patient-reported outcomes in clinical practice

    Patient-reported outcomes in clinical practice per Sarah Dobrozsi, Julie A. Panepinto

    Publicat 2015
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  2. 2
    Hydroxyurea use in sickle cell disease: the battle with low prescription rates, poor patient compliance and fears of toxicities

    Hydroxyurea use in sickle cell disease: the battle with low prescription rates, poor patient compliance and fears of toxicities per Amanda M. Brandow, Julie A. Panepinto

    Publicat 2010
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  3. 3
    Development of the PedsQL™ sickle cell disease module items: qualitative methods

    Development of the PedsQL™ sickle cell disease module items: qualitative methods per Julie A. Panepinto, Sylvia Torres, James W. Varni

    Publicat 2011
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  4. 4
    Differences in Health-Related Quality of Life in Children With Sickle Cell Disease Receiving Hydroxyurea

    Differences in Health-Related Quality of Life in Children With Sickle Cell Disease Receiving Hydroxyurea per Courtney D. Thornburg, Agustin Calatroni, Julie A. Panepinto

    Publicat 2011
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  5. 5
    COVID-19 in individuals with sickle cell disease/trait compared with other Black individuals

    COVID-19 in individuals with sickle cell disease/trait compared with other Black individuals per Ashima Singh, Amanda M. Brandow, Julie A. Panepinto

    Publicat 2021
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  6. 6
    Early insights into the neurobiology of pain in sickle cell disease: A systematic review of the literature

    Early insights into the neurobiology of pain in sickle cell disease: A systematic review of the literature per Amanda M. Brandow, Rebecca A. Farley, Julie A. Panepinto

    Publicat 2015
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  7. 7
    Neuropathic pain in patients with sickle cell disease

    Neuropathic pain in patients with sickle cell disease per Amanda M. Brandow, Rebecca A. Farley, Julie A. Panepinto

    Publicat 2013
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  8. 8
    Hydroxyurea in children with sickle cell disease: Practice patterns and barriers to utilization

    Hydroxyurea in children with sickle cell disease: Practice patterns and barriers to utilization per Amanda M. Brandow, Danielle L. Jirovec, Julie A. Panepinto

    Publicat 2010
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  9. 9
    A psychometric evaluation of the PedsQL™ Family Impact Module in parents of children with sickle cell disease

    A psychometric evaluation of the PedsQL™ Family Impact Module in parents of children with sickle cell disease per Julie A. Panepinto, Raymond G. Hoffmann, Nicholas M. Pajewski

    Publicat 2009
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  10. 10
    Clinically Meaningful Interpretation of Pediatric Health-related Quality of Life in Sickle Cell Disease

    Clinically Meaningful Interpretation of Pediatric Health-related Quality of Life in Sickle Cell Disease per Lauren M. Beverung, James W. Varni, Julie A. Panepinto

    Publicat 2014
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  11. 11
    The number of people with sickle‐cell disease in the United States: national and state estimates

    The number of people with sickle‐cell disease in the United States: national and state estimates per David C. Brousseau, Julie A. Panepinto, Mark Nimmer, Raymond G. Hoffmann

    Publicat 2009
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  12. 12
    Vaso‐occlusive painful events in sickle cell disease: Impact on child well‐being

    Vaso‐occlusive painful events in sickle cell disease: Impact on child well‐being per Amanda M. Brandow, David C. Brousseau, Nicholas M. Pajewski, Julie A. Panepinto

    Publicat 2009
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  13. 13
    The Performance of the PedsQL Generic Core Scales in Children With Sickle Cell Disease

    The Performance of the PedsQL Generic Core Scales in Children With Sickle Cell Disease per Julie A. Panepinto, Nicholas M. Pajewski, Lisa M. Foerster, Raymond G. Hoffmann

    Publicat 2008
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  14. 14
    Impact of family income and sickle cell disease on the health-related quality of life of children

    Impact of family income and sickle cell disease on the health-related quality of life of children per Julie A. Panepinto, Nicholas M. Pajewski, Lisa M. Foerster, Svapna Sabnis, Raymond G. Hoffmann

    Publicat 2008
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  15. 15
    When children with sickle‐cell disease become adults: Lack of outpatient care leads to increased use of the emergency department

    When children with sickle‐cell disease become adults: Lack of outpatient care leads to increased use of the emergency department per Bradd G. Hemker, David C. Brousseau, Ke Yan, Raymond G. Hoffmann, Julie A. Panepinto

    Publicat 2011
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  16. 16
    Impact of pediatric cancer on family relationships

    Impact of pediatric cancer on family relationships per Craig Erker, Ke Yan, Liyun Zhang, Kristin Bingen, Kathryn E. Flynn, Julie A. Panepinto

    Publicat 2018
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  17. 17
    Patients with sickle cell disease have increased sensitivity to cold and heat

    Patients with sickle cell disease have increased sensitivity to cold and heat per Amanda M. Brandow, Cheryl L. Stucky, Cheryl A. Hillery, Raymond G. Hoffmann, Julie A. Panepinto

    Publicat 2012
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  18. 18
    Health‐related quality of life in children with sickle cell disease: child and parent perception

    Health‐related quality of life in children with sickle cell disease: child and parent perception per Julie A. Panepinto, Kerry M. O’Mahar, Michael R. DeBaun, Fausto R. Loberiza, John P. Scott

    Publicat 2005
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  19. 19
    A Prospective Study of Parent Health-Related Quality of Life before and after Discharge from the Neonatal Intensive Care Unit

    A Prospective Study of Parent Health-Related Quality of Life before and after Discharge from the Neonatal Intensive Care Unit per Sarah McAndrew, Krishna Acharya, Jacqueline Westerdahl, David C. Brousseau, Julie A. Panepinto, Pippa Simpson, Jonathan Leuthner, Joanne Lagatta

    Publicat 2019
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  20. 20
    The impact on quality of life on families of children on an elimination diet for Non-immunoglobulin E mediated gastrointestinal food allergies

    The impact on quality of life on families of children on an elimination diet for Non-immunoglobulin E mediated gastrointestinal food allergies per Rosan Meyer, Heather Godwin, Robert Dziubak, Julie A. Panepinto, Ru-Xin M. Foong, Mandy Bryon, Adriana Chebar Lozinsky, Kate Reeve, Neil Shah

    Publicat 2017
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