Resultados de procura - Jeffrey R. Botkin

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  1. 1
    Ethical issues in pediatric genetic testing and screening

    Ethical issues in pediatric genetic testing and screening por Jeffrey R. Botkin

    Publicado 2016
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  2. 2
    Whole Genome Sequencing and Newborn Screening

    Whole Genome Sequencing and Newborn Screening por Jeffrey R. Botkin, Erin Rothwell

    Publicado 2016
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  3. 3
    Pediatric Biobanks: Approaching Informed Consent for Continuing Research After Children Grow Up

    Pediatric Biobanks: Approaching Informed Consent for Continuing Research After Children Grow Up por Aaron J. Goldenberg, Sara Chandros Hull, Jeffrey R. Botkin, Benjamin S. Wilfond

    Publicado 2009
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  4. 4
    Retention and Research Use of Residual Newborn Screening Bloodspots

    Retention and Research Use of Residual Newborn Screening Bloodspots por Jeffrey R. Botkin, Aaron J. Goldenberg, Erin Rothwell, Rebecca Anderson, Michelle Lewis

    Publicado 2012
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  5. 5
    State Laws Regarding the Retention and Use of Residual Newborn Screening Blood Samples

    State Laws Regarding the Retention and Use of Residual Newborn Screening Blood Samples por Michelle Lewis, Aaron J. Goldenberg, Rebecca Anderson, Erin Rothwell, Jeffrey R. Botkin

    Publicado 2011
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  6. 6
    Cost-Effectiveness of Nusinersen and Universal Newborn Screening for Spinal Muscular Atrophy

    Cost-Effectiveness of Nusinersen and Universal Newborn Screening for Spinal Muscular Atrophy por Ali Jalali, Erin Rothwell, Jeffrey R. Botkin, Rebecca Anderson, Russell J. Butterfield, Richard E. Nelson

    Publicado 2020
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  7. 7
    Experiences among Women with Positive Prenatal Expanded Carrier Screening Results

    Experiences among Women with Positive Prenatal Expanded Carrier Screening Results por Erin Rothwell, Erin Johnson, Amber Mathiesen, Kylie Golden, Audrey Metcalf, Nancy C. Rose, Jeffrey R. Botkin

    Publicado 2016
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  8. 8
    A Randomized Controlled Trial of an Electronic Informed Consent Process

    A Randomized Controlled Trial of an Electronic Informed Consent Process por Erin Rothwell, Bob Wong, Nancy C. Rose, Rebecca Anderson, Beth Fedor, Louisa A. Stark, Jeffrey R. Botkin

    Publicado 2014
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  9. 9
    Newborn Screening for Cystic Fibrosis: Evaluation of Benefits and Risks and Recommendations for State Newborn Screening Programs—

    Newborn Screening for Cystic Fibrosis: Evaluation of Benefits and Risks and Recommendations for State Newborn Screening Programs— por Scott D. Grosse, Coleen A. Boyle, Jeffrey R. Botkin, Anne Marie Comeau, Martin Kharrazi, Margaret Rosenfeld, Benjamin S. Wilfond

    Publicado 2005
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  10. 10
    The Challenges of Collaboration for Academic and Community Partners in a Research Partnership: Points to Consider

    The Challenges of Collaboration for Academic and Community Partners in a Research Partnership: Points to Consider por Lainie Friedman Ross, Allan Loup, Robert M. Nelson, Jeffrey R. Botkin, Rhonda G. Kost, George R. Smith, Sarah Gehlert

    Publicado 2010
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  11. 11
    Human Subjects Protections in Community-Engaged Research: A Research Ethics Framework

    Human Subjects Protections in Community-Engaged Research: A Research Ethics Framework por Lainie Friedman Ross, Allan Loup, Robert M. Nelson, Jeffrey R. Botkin, Rhonda G. Kost, George R. Smith, Sarah Gehlert

    Publicado 2010
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  12. 12
    Public Attitudes Regarding the Use of Residual Newborn Screening Specimens for Research

    Public Attitudes Regarding the Use of Residual Newborn Screening Specimens for Research por Jeffrey R. Botkin, Erin Rothwell, Rebecca Anderson, Louisa A. Stark, Aaron J. Goldenberg, Michelle Lewis, Matthew J. Burbank, Bob Wong

    Publicado 2012
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  13. 13
    Outcomes of interest in evidence-based evaluations of genetic tests

    Outcomes of interest in evidence-based evaluations of genetic tests por Jeffrey R. Botkin, Steven M. Teutsch, Celia I. Kaye, Maxine Hayes, James E. Haddow, Linda Bradley, Kathleen Szegda, W. David Dotson

    Publicado 2010
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  14. 14
    The Ethics of Artificial Intelligence in Pathology and Laboratory Medicine: Principles and Practice

    The Ethics of Artificial Intelligence in Pathology and Laboratory Medicine: Principles and Practice por Brian R. Jackson, Ye Ye, James M. Crawford, Michael J. Becich, Somak Roy, Jeffrey R. Botkin, Monica E. de Baca, Liron Pantanowitz

    Publicado 2021
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  15. 15
    Evaluating Harms in the Assessment of Net Benefit: A Framework for Newborn Screening Condition Review

    Evaluating Harms in the Assessment of Net Benefit: A Framework for Newborn Screening Condition Review por Aaron J. Goldenberg, Anne Marie Comeau, Scott D. Grosse, Susan Tanksley, Lisa A. Prosser, Jelili Ojodu, Jeffrey R. Botkin, Alex R. Kemper, Nancy Green

    Publicado 2016
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  16. 16
    Ethical concerns relating to genetic risk scores for suicide

    Ethical concerns relating to genetic risk scores for suicide por Anna R. Docherty, Brent M. Kious, Teneille R. Brown, Leslie P. Francis, Louisa A. Stark, Brooks Keeshin, Jeffrey R. Botkin, Emily DiBlasi, Doug Gray, Hilary Coon

    Publicado 2021
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  17. 17
    Patients' Views on Identifiability of Samples and Informed Consent for Genetic Research

    Patients' Views on Identifiability of Samples and Informed Consent for Genetic Research por Sara Chandros Hull, Richard R. Sharp, Jeffrey R. Botkin, Mark A. Brown, Mark Hughes, Jeremy Sugarman, Debra A. Schwinn, Pamela Sankar, Dragana Bolcic‐Jankovic, Brian Clarridge, Benjamin S. Wilfond

    Publicado 2008
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  18. 18
    Recommendations from the EGAPP Working Group: genetic testing strategies in newly diagnosed individuals with colorectal cancer aimed at reducing morbidity and mortality from Lynch syndrome in relatives

    Recommendations from the EGAPP Working Group: genetic testing strategies in newly diagnosed individuals with colorectal cancer aimed at reducing morbidity and mortality from Lynch... por Alfred O. Berg, Katrina Armstrong, Jeffrey R. Botkin, Ned Calonge, James E. Haddow, Maxine Hayes, Celia I. Kaye, Kathryn E. Phillips, Margaret Piper, Carolyn Richards, Joan Scott, Ora L. Strickland, Steven M. Teutsch

    Publicado 2009
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  19. 19
    Points to Consider: Ethical, Legal, and Psychosocial Implications of Genetic Testing in Children and Adolescents

    Points to Consider: Ethical, Legal, and Psychosocial Implications of Genetic Testing in Children and Adolescents por Jeffrey R. Botkin, John W. Belmont, Jonathan S. Berg, Benjamin E. Berkman, Yvonne Bombard, Ingrid A. Holm, Howard P. Levy, Kelly E. Ormond, Howard M. Saal, Nancy B. Spinner, Benjamin S. Wilfond, Joseph D. McInerney

    Publicado 2015
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  20. 20
    Parental Permission for Pilot Newborn Screening Research: Guidelines From the NBSTRN

    Parental Permission for Pilot Newborn Screening Research: Guidelines From the NBSTRN por Jeffrey R. Botkin, Michelle Lewis, Michael S. Watson, Kathryn J. Swoboda, Rebecca Anderson, Susan A. Berry, Natasha Bonhomme, Jeffrey P. Brosco, Anne Marie Comeau, Aaron J. Goldenberg, Edward B. Goldman, Bradford L. Therrell, Jill Levy-Fisch, Beth A. Tarini, Benjamin S. Wilfond, Steve Dobrowolski, Amy Brower, Felipe E. Vizcarrondo

    Publicado 2014
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