Search Results - Jane Kaye

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  1. 1
    From single biobanks to international networks: developing e-governance

    From single biobanks to international networks: developing e-governance by Jane Kaye

    Published 2011
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  2. 2
    Do we need a uniform regulatory system for biobanks across Europe?

    Do we need a uniform regulatory system for biobanks across Europe? by Jane Kaye

    Published 2005
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  3. 3
    The regulation of direct-to-consumer genetic tests

    The regulation of direct-to-consumer genetic tests by Jane Kaye

    Published 2008
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  4. 4
    The Tension Between Data Sharing and the Protection of Privacy in Genomics Research

    The Tension Between Data Sharing and the Protection of Privacy in Genomics Research by Jane Kaye

    Published 2011
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  5. 5
    Data sharing policy design for consortia: challenges for sustainability

    Data sharing policy design for consortia: challenges for sustainability by Jane Kaye, Naomi Hawkins

    Published 2014
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  6. 6
    Equitable Participation in Biobanks: The Risks and Benefits of a “Dynamic Consent” Approach

    Equitable Participation in Biobanks: The Risks and Benefits of a “Dynamic Consent” Approach by Megan Prictor, Harriet Teare, Jane Kaye

    Published 2018
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  7. 7
    Reflections on dynamic consent in biomedical research: the story so far

    Reflections on dynamic consent in biomedical research: the story so far by Harriet Teare, Megan Prictor, Jane Kaye

    Published 2020
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  8. 8
    Towards ‘Engagement 2.0’: Insights from a study of dynamic consent with biobank participants

    Towards ‘Engagement 2.0’: Insights from a study of dynamic consent with biobank participants by Harriet Teare, Michael Morrison, Edgar A. Whitley, Jane Kaye

    Published 2015
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  9. 9
    Ethical implications of the use of whole genome methods in medical research

    Ethical implications of the use of whole genome methods in medical research by Jane Kaye, Paula Boddington, Jantina de Vries, Naomi Hawkins, Karen Melham

    Published 2009
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  10. 10
    Assessing the Privacy Risks of Data Sharing in Genomics

    Assessing the Privacy Risks of Data Sharing in Genomics by Catherine Heeney, Naomi Hawkins, Jantina de Vries, Paula Boddington, Jane Kaye

    Published 2010
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  11. 11
    Data sharing in genomics — re-shaping scientific practice

    Data sharing in genomics — re-shaping scientific practice by Jane Kaye, Catherine Heeney, Naomi Hawkins, Jantina de Vries, Paula Boddington

    Published 2009
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  12. 12
    The European General Data Protection Regulation: Challenges and Considerations for iPSC Researchers and Biobanks

    The European General Data Protection Regulation: Challenges and Considerations for iPSC Researchers and Biobanks by Michael Morrison, Jessica Bell, Carol George, Shawn Harmon, Megan Munsie, Jane Kaye

    Published 2017
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  13. 13
    The evolution of withdrawal: negotiating research relationships in biobanking

    The evolution of withdrawal: negotiating research relationships in biobanking by Karen Melham, Linda Briceño Moraia, Colin Mitchell, Michael Morrison, Harriet Teare, Jane Kaye

    Published 2014
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  14. 14
    Dynamic consent: a patient interface for twenty-first century research networks

    Dynamic consent: a patient interface for twenty-first century research networks by Jane Kaye, Edgar A. Whitley, David J. Lund, Michael Morrison, Harriet Teare, Karen Melham

    Published 2014
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  15. 15
    Patient Perspectives on Sharing Anonymized Personal Health Data Using a Digital System for Dynamic Consent and Research Feedback: A Qualitative Study

    Patient Perspectives on Sharing Anonymized Personal Health Data Using a Digital System for Dynamic Consent and Research Feedback: A Qualitative Study by Karen Spencer, Caroline Sanders, Edgar A. Whitley, David J. Lund, Jane Kaye, William G Dixon

    Published 2016
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  16. 16
    Dynamic Consent: A Possible Solution to Improve Patient Confidence and Trust in How Electronic Patient Records Are Used in Medical Research

    Dynamic Consent: A Possible Solution to Improve Patient Confidence and Trust in How Electronic Patient Records Are Used in Medical Research by Hawys Williams, Karen Spencer, Caroline Sanders, David J. Lund, Edgar A. Whitley, Jane Kaye, William G Dixon

    Published 2015
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  17. 17
    ‘CTRL’: an online, Dynamic Consent and participant engagement platform working towards solving the complexities of consent in genomic research

    ‘CTRL’: an online, Dynamic Consent and participant engagement platform working towards solving the complexities of consent in genomic research by Matilda Haas, Harriet Teare, Megan Prictor, Gabi Ceregra, Miranda E. Vidgen, David Bunker, Jane Kaye, Tiffany Boughtwood

    Published 2021
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  18. 18
    Public Access to Genome-Wide Data: Five Views on Balancing Research with Privacy and Protection

    Public Access to Genome-Wide Data: Five Views on Balancing Research with Privacy and Protection by George M. Church, Catherine Heeney, Naomi Hawkins, Jantina de Vries, Paula Boddington, Jane Kaye, Martin Bobrow, Bruce S. Weir

    Published 2009
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  19. 19
    Building a data sharing model for global genomic research

    Building a data sharing model for global genomic research by Patricia Kosseim, Edward S. Dove, Carman Baggaley, Eric M. Meslin, Fred H. Cate, Jane Kaye, Jennifer R. Harris, Bartha Maria Knoppers

    Published 2014
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  20. 20
    Towards a data sharing Code of Conduct for international genomic research

    Towards a data sharing Code of Conduct for international genomic research by Bartha Maria Knoppers, Jennifer R. Harris, Anne Marie Tassé, Isabelle Budin‐Ljøsne, Jane Kaye, Mylène Deschênes, Ma’n H. Zawati

    Published 2011
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