Suchergebnisse - Hernberg-Stahl, Elizabeth

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  1. 1
    Scope and management of Patient Registries for orphan rare disease (ORD) meeting the demands of all involved stakeholders

    Scope and management of Patient Registries for orphan rare disease (ORD) meeting the demands of all involved stakeholders von Hernberg-Ståhl, Elizabeth

    Veröffentlicht 2010
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    Twenty years of the Fabry Outcome Survey (FOS): insights, achievements, and lessons learned from a global patient registry

    Twenty years of the Fabry Outcome Survey (FOS): insights, achievements, and lessons learned from a global patient registry von Beck, Michael, Ramaswami, Uma, Hernberg-Ståhl, Elizabeth, Hughes, Derralynn A., Kampmann, Christoph, Mehta, Atul B., Nicholls, Kathleen, Niu, Dau-Ming, Pintos-Morell, Guillem, Reisin, Ricardo, West, Michael L., Schenk, Jörn, Anagnostopoulou, Christina, Botha, Jaco, Giugliani, Roberto

    Veröffentlicht 2022
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    Ten years of the Hunter Outcome Survey (HOS): insights, achievements, and lessons learned from a global patient registry

    Ten years of the Hunter Outcome Survey (HOS): insights, achievements, and lessons learned from a global patient registry von Muenzer, Joseph, Jones, Simon A., Tylki-Szymańska, Anna, Harmatz, Paul, Mendelsohn, Nancy J., Guffon, Nathalie, Giugliani, Roberto, Burton, Barbara K., Scarpa, Maurizio, Beck, Michael, Jangelind, Yvonne, Hernberg-Stahl, Elizabeth, Larsen, Maria Paabøl, Pulles, Tom, Whiteman, David A. H.

    Veröffentlicht 2017
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