Zoekresultaten - Dyke, Stephanie

Developing and implementing an institute-wide data sharing policy door Dyke, Stephanie OM, Hubbard, Tim JP

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Sharing health-related data: a privacy test? door Dyke, Stephanie OM, Dove, Edward S, Knoppers, Bartha M

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Risk of re-identification of epigenetic methylation data: a more nuanced response is needed door Joly, Yann, Dyke, Stephanie OM, Cheung, Warren A, Rothstein, Mark A, Pastinen, Tomi

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Evolving data access policy: The Canadian context door Dyke, Stephanie O.M., Saulnier, Katie M., Pastinen, Tomi, Bourque, Guillaume, Joly, Yann

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Registered access: a ‘Triple-A' approach door Dyke, Stephanie O M, Kirby, Emily, Shabani, Mahsa, Thorogood, Adrian, Kato, Kazuto, Knoppers, Bartha M

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Communicating science: epigenetics in the spotlight door Dyke, Stephanie O M, Ennis, Catherine A, Joly, Yann, Walter, Jörn, Siebert, Reiner, Pastinen, Tomi

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Benefits and barriers in the design of harmonized access agreements for international data sharing door Saulnier, Katie M., Bujold, David, Dyke, Stephanie O. M., Dupras, Charles, Beck, Stephan, Bourque, Guillaume, Joly, Yann

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“Matching” Consent to Purpose: The Example of the Matchmaker Exchange door Dyke, Stephanie O.M., Knoppers, Bartha M., Hamosh, Ada, Firth, Helen V., Hurles, Matthew, Brudno, Michael, Boycott, Kym M., Philippakis, Anthony A., Rehm, Heidi L.

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Points-to-consider on the return of results in epigenetic research door Dyke, Stephanie O. M., Saulnier, Katie M., Dupras, Charles, Webster, Amy P., Maschke, Karen, Rothstein, Mark, Siebert, Reiner, Walter, Jörn, Beck, Stephan, Pastinen, Tomi, Joly, Yann

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Simplifying research access to genomics and health data with Library Cards door Cabili, Moran N., Carey, Knox, Dyke, Stephanie O. M., Brookes, Anthony J., Fiume, Marc, Jeanson, Francis, Kerry, Giselle, Lash, Alex, Sofia, Heidi, Spalding, Dylan, Tasse, Anne-Marie, Varma, Susheel, Pandya, Ravi

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A community effort to protect genomic data sharing, collaboration and outsourcing door Wang, Shuang, Jiang, Xiaoqian, Tang, Haixu, Wang, Xiaofeng, Bu, Diyue, Carey, Knox, Dyke, Stephanie OM, Fox, Dov, Jiang, Chao, Lauter, Kristin, Malin, Bradley, Sofia, Heidi, Telenti, Amalio, Wang, Lei, Wang, Wenhao, Ohno-Machado, Lucila

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Managing clinically significant findings in research: the UK10K example door Kaye, Jane, Hurles, Matthew, Griffin, Heather, Grewal, Jasote, Bobrow, Martin, Timpson, Nic, Smee, Carol, Bolton, Patrick, Durbin, Richard, Dyke, Stephanie, Fitzpatrick, David, Kennedy, Karen, Kent, Alastair, Muddyman, Dawn, Muntoni, Francesco, Raymond, Lucy F, Semple, Robert, Spector, Tim

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Epigenome data release: a participant-centered approach to privacy protection door Dyke, Stephanie O. M., Cheung, Warren A., Joly, Yann, Ammerpohl, Ole, Lutsik, Pavlo, Rothstein, Mark A., Caron, Maxime, Busche, Stephan, Bourque, Guillaume, Rönnblom, Lars, Flicek, Paul, Beck, Stephan, Hirst, Martin, Stunnenberg, Henk, Siebert, Reiner, Walter, Jörn, Pastinen, Tomi

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Responsible sharing of biomedical data and biospecimens via the “Automatable Discovery and Access Matrix” (ADA-M) door Woolley, J. Patrick, Kirby, Emily, Leslie, Josh, Jeanson, Francis, Cabili, Moran N., Rushton, Gregory, Hazard, James G., Ladas, Vagelis, Veal, Colin D., Gibson, Spencer J., Tassé, Anne-Marie, Dyke, Stephanie O. M., Gaff, Clara, Thorogood, Adrian, Knoppers, Bartha Maria, Wilbanks, John, Brookes, Anthony J.

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Return of individual research results from genomic research: A systematic review of stakeholder perspectives door Vears, Danya F., Minion, Joel T., Roberts, Stephanie J., Cummings, James, Machirori, Mavis, Blell, Mwenza, Budin-Ljøsne, Isabelle, Cowley, Lorraine, Dyke, Stephanie O. M., Gaff, Clara, Green, Robert, Hall, Alison, Johns, Amber L., Knoppers, Bartha M., Mulrine, Stephanie, Patch, Christine, Winkler, Eva, Murtagh, Madeleine J.

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Federated discovery and sharing of genomic data using Beacons door Fiume, Marc, Cupak, Miroslav, Keenan, Stephen, Rambla, Jordi, de la Torre, Sabela, Dyke, Stephanie O. M., Brookes, Anthony J., Carey, Knox, Lloyd, David, Goodhand, Peter, Haeussler, Maximilian, Baudis, Michael, Stockinger, Heinz, Dolman, Lena, Lappalainen, Ilkka, Törnroos, Juha, Linden, Mikael, Spalding, J. Dylan, Ur-Rehman, Saif, Page, Angela, Flicek, Paul, Sherry, Stephen, Haussler, David, Varma, Susheel, Saunders, Gary, Scollen, Serena

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Publisher Correction: Federated discovery and sharing of genomic data using Beacons door Fiume, Marc, Cupak, Miroslav, Keenan, Stephen, Rambla, Jordi, de la Torre, Sabela, Dyke, Stephanie O. M., Brookes, Anthony J., Carey, Knox, Lloyd, David, Goodhand, Peter, Haeussler, Maximilian, Baudis, Michael, Stockinger, Heinz, Dolman, Lena, Lappalainen, Ilkka, Törnroos, Juha, Linden, Mikael, Spalding, J. Dylan, Ur-Rehman, Saif, Page, Angela, Flicek, Paul, Sherry, Stephen, Haussler, David, Varma, Susheel, Saunders, Gary, Scollen, Serena

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GA4GH Passport standard for digital identity and access permissions door Voisin, Craig, Linden, Mikael, Dyke, Stephanie O.M., Bowers, Sarion R., Alper, Pinar, Barkley, Maxmillian P., Bernick, David, Chao, Jianpeng, Courtot, Mélanie, Jeanson, Francis, Konopko, Melissa A., Kuba, Martin, Lawson, Jonathan, Leinonen, Jaakko, Li, Stephanie, Ota Wang, Vivian, Philippakis, Anthony A., Reinold, Kathy, Rushton, Gregory A., Spalding, J. Dylan, Törnroos, Juha, Tulchinsky, Ilya, Guidry Auvil, Jaime M., Nyrönen, Tommi H.

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Open science datasets from PREVENT-AD, a longitudinal cohort of pre-symptomatic Alzheimer’s disease door Tremblay-Mercier, Jennifer, Madjar, Cécile, Das, Samir, Pichet Binette, Alexa, Dyke, Stephanie O.M., Étienne, Pierre, Lafaille-Magnan, Marie-Elyse, Remz, Jordana, Bellec, Pierre, Louis Collins, D., Natasha Rajah, M., Bohbot, Veronique, Leoutsakos, Jeannie-Marie, Iturria-Medina, Yasser, Kat, Justin, Hoge, Richard D., Gauthier, Serge, Tardif, Christine L., Mallar Chakravarty, M., Poline, Jean-Baptiste, Rosa-Neto, Pedro, Evans, Alan C., Villeneuve, Sylvia, Poirier, Judes, Breitner, John C.S.

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International Cooperation to Enable the Diagnosis of All Rare Genetic Diseases door Boycott, Kym M., Rath, Ana, Chong, Jessica X., Hartley, Taila, Alkuraya, Fowzan S., Baynam, Gareth, Brookes, Anthony J., Brudno, Michael, Carracedo, Angel, den Dunnen, Johan T., Dyke, Stephanie O.M., Estivill, Xavier, Goldblatt, Jack, Gonthier, Catherine, Groft, Stephen C., Gut, Ivo, Hamosh, Ada, Hieter, Philip, Höhn, Sophie, Hurles, Matthew E., Kaufmann, Petra, Knoppers, Bartha M., Krischer, Jeffrey P., Macek, Milan, Matthijs, Gert, Olry, Annie, Parker, Samantha, Paschall, Justin, Philippakis, Anthony A., Rehm, Heidi L., Robinson, Peter N., Sham, Pak-Chung, Stefanov, Rumen, Taruscio, Domenica, Unni, Divya, Vanstone, Megan R., Zhang, Feng, Brunner, Han, Bamshad, Michael J., Lochmüller, Hanns

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