Ohcanbohtosat - Collin-Histed, Tanya

Measuring disease activity and patient experience remotely using wearable technology and a mobile phone app: outcomes from a pilot study in Gaucher disease Dahkki Donald, Aimee, Cizer, Huseyin, Finnegan, Niamh, Collin-Histed, Tanya, Hughes, Derralynn A., Davies, Elin Haf

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The European Gaucher Alliance: a survey of member patient organisations’ activities, healthcare environments and concerns Dahkki Žnidar, Irena, Collin-Histed, Tanya, Niemeyer, Pascal, Parkkinen, Johanna, Lauridsen, Anne-Grethe, Zariņa, Sandra, Cohen, Yossi, Manuel, Jeremy

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A charitable access program for patients with lysosomal storage disorders in underserved communities worldwide Dahkki Mehta, Atul, Ramaswami, Uma, Muenzer, Joseph, Giugliani, Roberto, Ullrich, Kurt, Collin-Histed, Tanya, Panahloo, Zoya, Wellhoefer, Hartmann, Frader, Joel

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The definition of neuronopathic Gaucher disease Dahkki Schiffmann, Raphael, Sevigny, Jeff, Rolfs, Arndt, Davies, Elin Haf, Goker‐Alpan, Ozlem, Abdelwahab, Magy, Vellodi, Ashok, Mengel, Eugen, Lukina, Elena, Yoo, Han‐Wook, Collin‐Histed, Tanya, Narita, Aya, Dinur, Tama, Revel‐Vilk, Shoshana, Arkadir, David, Szer, Jeff, Wajnrajch, Michael, Ramaswami, Uma, Sidransky, Ellen, Donald, Aimee, Zimran, Ari

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