Search Results - Bartha Maria Knoppers

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  1. 1
    Framework for responsible sharing of genomic and health-related data

    Framework for responsible sharing of genomic and health-related data by Bartha Maria Knoppers

    Published 2014
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  2. 2
    International ethics harmonization and the global alliance for genomics and health

    International ethics harmonization and the global alliance for genomics and health by Bartha Maria Knoppers

    Published 2014
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  3. 3
    Mind the Gap: Policy Approaches to Embryonic Stem Cell and Cloning Research in 50 Countries

    Mind the Gap: Policy Approaches to Embryonic Stem Cell and Cloning Research in 50 Countries by Rosario Isasi, Bartha Maria Knoppers

    Published 2006
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  4. 4
    Ethics and Big Data in health

    Ethics and Big Data in health by Bartha Maria Knoppers, Adrian Thorogood

    Published 2017
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  5. 5
    Factors influencing intrafamilial communication of hereditary breast and ovarian cancer genetic information

    Factors influencing intrafamilial communication of hereditary breast and ovarian cancer genetic information by Gillian Nycum, Denise Avard, Bartha Maria Knoppers

    Published 2009
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  6. 6
    Power to the people: a wiki-governance model for biobanks

    Power to the people: a wiki-governance model for biobanks by Edward S. Dove, Yann Joly, Bartha Maria Knoppers

    Published 2012
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  7. 7
    Return of whole-genome sequencing results in paediatric research: a statement of the P3G international paediatrics platform

    Return of whole-genome sequencing results in paediatric research: a statement of the P3G international paediatrics platform by Bartha Maria Knoppers, Denise Avard, Karine Sénécal

    Published 2013
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  8. 8
    From the principles of genomic data sharing to the practices of data access committees

    From the principles of genomic data sharing to the practices of data access committees by Mahsa Shabani, Bartha Maria Knoppers, Pascal Borry

    Published 2015
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  9. 9
    Return of individual genomic research results: are laws and policies keeping step?

    Return of individual genomic research results: are laws and policies keeping step? by Adrian Thorogood, Gratien Dalpé, Bartha Maria Knoppers

    Published 2019
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  10. 10
    An international policy on returning genomic research results

    An international policy on returning genomic research results by Anna Lewis, Bartha Maria Knoppers, Robert C. Green

    Published 2021
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  11. 11
    The emergence of an ethical duty to disclose genetic research results: international perspectives

    The emergence of an ethical duty to disclose genetic research results: international perspectives by Bartha Maria Knoppers, Yann Joly, Jacques Simard, Francine Durocher

    Published 2006
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  12. 12
    Trends in ethical and legal frameworks for the use of human biobanks

    Trends in ethical and legal frameworks for the use of human biobanks by Anne Cambon‐Thomsen, Emmanuelle Rial‐Sebbag, Bartha Maria Knoppers

    Published 2007
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  13. 13
    Sharing health-related data: a privacy test?

    Sharing health-related data: a privacy test? by Stephanie O. M. Dyke, Edward S. Dove, Bartha Maria Knoppers

    Published 2016
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  14. 14
    Genomic cloud computing: legal and ethical points to consider

    Genomic cloud computing: legal and ethical points to consider by Edward S. Dove, Yann Joly, Anne-Marie Tassé, Bartha Maria Knoppers

    Published 2014
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  15. 15
    Population Genomics: The Public Population Project in Genomics (P3G): a proof of concept?

    Population Genomics: The Public Population Project in Genomics (P3G): a proof of concept? by Bartha Maria Knoppers, Isabel Fortier, D Legault, Paul R. Burton

    Published 2008
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  16. 16
    Data Sharing, Year 1 — Access to Data from Industry-Sponsored Clinical Trials

    Data Sharing, Year 1 — Access to Data from Industry-Sponsored Clinical Trials by Brian L. Strom, Marc Buyse, John Hughes, Bartha Maria Knoppers

    Published 2014
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  17. 17
    Data Sharing — Is the Juice Worth the Squeeze?

    Data Sharing — Is the Juice Worth the Squeeze? by Brian L. Strom, Marc Buyse, John Hughes, Bartha Maria Knoppers

    Published 2016
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  18. 18
    Personalized medicine and access to health care: potential for inequitable access?

    Personalized medicine and access to health care: potential for inequitable access? by Kelly A. McClellan, Denise Avard, Jacques Simard, Bartha Maria Knoppers

    Published 2012
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  19. 19
    Preconception care and genetic risk: ethical issues

    Preconception care and genetic risk: ethical issues by Guido M. W. R. de Wert, Wybo Dondorp, Bartha Maria Knoppers

    Published 2011
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  20. 20
    A human rights approach to an international code of conduct for genomic and clinical data sharing

    A human rights approach to an international code of conduct for genomic and clinical data sharing by Bartha Maria Knoppers, Jennifer R. Harris, Isabelle Budin‐Ljøsne, Edward S. Dove

    Published 2014
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